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# Cholangiocarcinoma Australia

Cholangiocarcinoma is a cancer that forms in the lining of the Bile Ducts.  Bile ducts begin as small tributaries within the liver forming into one common hepatic duct just below the liver.

## Sitemaps

- [XML Sitemap](https://cholangio.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [HER2 biliary cancer trial Australia | Early-phase study (NCT05523947)\](https://cholangio.org/her2-biliary-cancer-trial-australia-early-phase-study-nct05523947/) - HER2 biliary cancer trial Australia. Early-phase study, eligibility, Australian sites, and how to explore this option with your oncologist.
- [Understanding Bile Duct Cancer Pathology, IHC and Genomic Reports](https://cholangio.org/bile-duct-cancer-pathology-ihc-genomic-reports/) - Learn how pathology, IHC and genomic reports help explain bile duct cancer diagnosis, tumour origin and treatment options.
- [CK7 and CK19 in Bile Duct Cancer](https://cholangio.org/ck7-and-ck19-bile-duct-cancer/) - CK7 and CK19 are bile duct cancer markers that help identify bile duct cells and may support future bile-based monitoring.
- [Cholangiocarcinoma Australia Webinar Review 2025](https://cholangio.org/cholangiocarcinoma-australia-webinar-review-2025/) - Review of CFA’s 2025 cholangiocarcinoma webinar on genomics, guidelines, matched therapy and Australian treatment pathways.
- [Cholangiocarcinoma Diagnosis Mistakes That Quietly Cost Patients Their Best Chance](https://cholangio.org/cholangiocarcinoma-diagnosis-mistakes/) - Avoid common cholangiocarcinoma diagnosis mistakes. Learn what to check early to preserve treatment options and make better next-step decisions.
- [Steve Holmes: Stage 4 Cholangiocarcinoma Survivor Story](https://cholangio.org/steve-holmes-stage-4-cholangiocarcinoma-survivor/) - Stage 4 cholangiocarcinoma survivor Steve Holmes shares his bile duct cancer story, Keytruda complete response, and why the Foundation began.
- [CCA Patient Toolkit](https://cholangio.org/patient-tool-kit/) - Step-by-step guide & toolkit for bile-duct cancer patients and caregivers, a road map that shines a light on the best pathway ahead
- [NRG1 Fusion Cholangiocarcinoma](https://cholangio.org/nrg1-fusion-cholangiocarcinoma/) - NRG1 Fusion Cholangiocarcinoma explained. FDA approves BIZENGRI targeted therapy for patients carrying an NRG1 fusion.
- [Lisa Craine - Cholangiocarcinoma Patient](https://cholangio.org/cholangiocarcinoma-patient-lisa-craine/) - Lisa Craine -Cholangiocarcinoma patient. Lisa speaks at the 2017 CCF Annual Conference on a Patients Perspective … Lisa speaking in 2017 (Above) + Lisa speaking 2014 (Below) Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2
- [Sandra Robertson Cholangiocarcinoma Survivor](https://cholangio.org/sandra-robertson-cholangiocarcinoma-survivor/) - Sandra Robertson cholangiocarcinoma survivor story shows how patient-led decisions, clarity, and faith turned a rare diagnosis into a five-year survival milestone.
- [HER2 Biliary Cancer: ERBB2 & Enhertu Explained](https://cholangio.org/her2-biliary-cancer/) - HER2 biliary cancer explained: how ERBB2 overexpression drives growth and how Enhertu targets HER2-positive bile duct and gallbladder cancers.
- [Immunotherapy in Cholangiocarcinoma: Why It Works for Some Patients](https://cholangio.org/immunotherapy-cholangiocarcinoma/) - Immunotherapy in cholangiocarcinoma explained. Learn why it works for some patients through dMMR, MSI-High and durable survival responses.
- [Cholangiocarcinoma Survival Pathway | Staying Alive. Staying Yourself.](https://cholangio.org/cholangiocarcinoma-survival-pathway/) - A cholangiocarcinoma survival pathway from a real patient. Learn the steps, decisions, and mindset that turn survival into action.
- [Cancer Becomes The Way ](https://cholangio.org/cancer-is-the-way/) - Cancer becomes the way. A patient-led culture built on response, not advocacy, turning diagnosis into action, clarity, and survival.
- [Inside Cholangio: Where It Begins](https://cholangio.org/inside-cholangio-where-it-begins/) - Understand where cholangiocarcinoma begins inside the bile ducts, so you can act earlier and keep treatment options open.
- [How We Win: The Three Survival Disciplines](https://cholangio.org/how-we-win-the-three-survival-disciplines/) - Cholangiocarcinoma: three survival disciplines explained. Learn three principles patients use to navigate bile duct cancer with clarity, action and resilience.
- [Beth Ivimey](https://cholangio.org/beth-ivimey-cholangiocarcinoma-journey/) - Beth Ivimey Cholangiocarcinoma Journey: from unresectable diagnosis to molecular profiling, clinical trial treatment and ongoing targeted therapy.
- [Mandy Wallace](https://cholangio.org/mandy-wallace-cholangiocarcinoma-survivor/) - Mandy Wallace cholangiocarcinoma survivor shares how rapid diagnosis, major liver surgery and decisive action led to 12 years well.
- [Wayne & Cheryl Troy](https://cholangio.org/wayne-cheryl-troy-surviving-cholangiocarcinoma/) - Wayne & Cheryl Troy share their cholangiocarcinoma survival story, IDH1 mutation, Tibsovo trial and PBS access in Australia.
- [Cholangiocarcinoma Survival System](https://cholangio.org/cholangiocarcinoma-survival-system/) - Why cholangiocarcinoma survival requires more than treatment. The system we built to help patients navigate cause, diagnosis, treatment, and recurrence.
- [Bile Gone Bad: The Rising Incidence of Bile Duct Cancer - The Hidden Dangers within Bile Composition](https://cholangio.org/bile-gone-bad-the-rising-incidence-of-bile-duct-cancer-the-hidden-dangers-within-bile-composition/) - Is your diet turning your bile toxic? Learn about the hidden cancer risks and how to protect your health.
- [ATM Mutation in Cancer: Context Before Conclusions](https://cholangio.org/understanding-atm-in-cancer-context-before-conclusions/) - ATM mutation in cancer is often misunderstood. This article explains what ATM means, how it relates to MMR and BRCA, and why context matters more than fear.
- [Jill Brown Cholangiocarcinoma | Podcast on losing her daughter Catie](https://cholangio.org/jill-brown-cholangiocarcinoma-podcast-on-losing-her-daughter-catie/) - Listen to the Jill Brown cholangiocarcinoma podcast as she shares losing her daughter Catie at 22 and reflects on grief and resilience.
- [Lynette Williams Cholangiocarcinoma Journey](https://cholangio.org/lynette-williams-cholangiocarcinoma/) - Lynette Williams cholangiocarcinoma story of early detection, liver resection, recurrence and structured response under pressure.
- [Jon Laing Cholangiocarcinoma Survivor](https://cholangio.org/jon-laing-cholangiocarcinoma-survivor/) - Jon Laing cholangiocarcinoma survivor story: surgical experience, Whipple recovery, and life six years after diagnosis and major surgery.
- [Steven West Cholangiocarcinoma Survivor | 11 Years On](https://cholangio.org/steven-west-cholangiocarcinoma-survivor/) - Steven West cholangiocarcinoma survivor shares how engagement, genomic testing and connection changed his path nearly eleven years after diagnosis.
- [Joe & Tegan's Cholangiocarcinoma Journey](https://cholangio.org/joe-tegans-story/) - Joe and Tegan’s cholangiocarcinoma story shows how truth, ownership and response can change trajectory through diagnosis, crisis and recurrence.
- [Bridging Funding Australia Why Approved Medicines Take 466 Days to Reach Patients](https://cholangio.org/bridging-funding-australia-medicine-access-delay/) - Australia approves medicines, yet patients wait an average of 466 days for access. This article explains bridging funding Australia and why it matters.
- [Lynette Williams: Cholangiocarcinoma Survivor](https://cholangio.org/lynette-williams/) - In order to successfully fight this disease we need to be armed with as much information as possible. Lynette Williams Cholangiocarcinoma Survivor
- [Dr Chris Rogan at APSCVIR – Through The Cholangio Lens](https://cholangio.org/dr-chris-rogan-at-apscvir-through-the-cholangio-lens/) - Cholangiocarcinoma is often overlooked. Dr Chris Rogan highlights liver-directed therapy and calls for World IR Day to reshape access and awareness.
- [Evaluating the New Cholangiocarcinoma Vaccine Trial: A Patient-Centric Analysis"](https://cholangio.org/evaluating-the-new-cholangiocarcinoma-vaccine-trial-a-patient-centric-analysis/) - An in-depth analysis of a cholangiocarcinoma vaccine trial, designed to empower patients with balanced insights into this experimental treatment. Detailed review of an experimental mRNA vaccine trial for cholangiocarcinoma, covering benefits, limitations, and patient-focused insights.
- [TAS-120: Futibatinib in Advanced Cholangiocarcinoma with FGFR2 Fusions](https://cholangio.org/tas-120-futibatinib-in-advanced-cholangiocarcinoma-with-fgfr2-fusions/) - TAS-120 (Futibatinib) offers hope for advanced cholangiocarcinoma with FGFR2 fusions. Explore the groundbreaking FOENIX-CCA4 Phase 2 study results.
- [FGFR2 Fusion The Fourth Domino](https://cholangio.org/fgfr2-fusion-the-fourth-domino/) - Discover How FGFR2 Fusion The Fourth Domino in ICC—triggering the shift from mutation to cancer. Learn how and why it happens, and what to do next.
- [FGFR2 Mutation Drives Cholangiocarcinoma](https://cholangio.org/fgfr2-mutation-drives-cholangiocarcinoma/) - FGFR2 mutation drives cholangiocarcinoma by triggering uncontrolled growth. Learn how this happens — and how targeted therapies can restore order.
- [Pemazyre – The FGFR2 Circuit Breaker](https://cholangio.org/pemazyre-the-circuit-breaker/) - Pemazyre – The FGFR2 Circuit Breaker explained for patients with FGFR2 fusion cholangiocarcinoma — how it works, when it’s used, and what to expect.
- [Reprogramming Bile Duct Cancer Tumours](https://cholangio.org/reprogramming-bile-duct-cancer-tumours/) - Mini tumors and RNA-based tools are helping reprogram bile duct cancer — guiding smarter treatments and reshaping how patients survive.
- [Servier Interviews Stage 4 Cholangiocarcinoma Survivor Steve Holmes](https://cholangio.org/servier-interviews-stage-4-cholangiocarcinoma-survivor-steve-holmes/) - Steve Holmes on survival, his brother Graeme's cholangio battle, founding the Cholangiocarcinoma Foundation Australia and Light Australia Green Servier interviews Stage 4 cholangiocarcinoma survivor Steve Holmes on response strategies, patient-led research, and transforming cancer survival outcomes.
- [Leading the Future of Cholangiocarcinoma Care—Because No One Else Will](https://cholangio.org/leading-the-future-of-cholangiocarcinoma-care-because-no-one-else-will/) - Landmark Event: Leading experts & patient advocates united for the largest-ever event on cholangiocarcinoma treatment standardisation in Australia, driving innovation & action.
- [Catie Brown](https://cholangio.org/catie-brown/) - Malua Bay mum Jill Brown’s mission to educate Australia on rare cancer that killed ‘beautiful’ daughter Catie. Jill Brown tragically lost her “beautiful” daughter Catie Brown in early 2023, after a hard fought six month battle with cholangiocarcinoma, a rare bile duct cancer.
- [Understanding Bilirubin: Your Body’s Natural Blood Compost](https://cholangio.org/understanding-bilirubin/) - Learn about bilirubin, its role in your body, symptoms like jaundice and itching, and how to track and respond to changes that impact liver and bile health.
- [Exploring the TAS-120-205 Trial: Understanding FGFR2 Inhibitor Impact on Cholangiocarcinoma Treatment"](https://cholangio.org/exploring-the-tas-120-205-trial/) - Discover the TAS-120-205 trial's insights into FGFR2 inhibitors and their role in cholangiocarcinoma treatment. Discover the TAS-120-205 trial's insights into FGFR2 inhibitors and their role in cholangiocarcinoma treatment. Learn how FGFR2 mutations drive cholangiocarcinoma and the latest treatments to block rogue cell growth.
- [Orphan Drug for Intrahepatic Bile Duct Cancer](https://cholangio.org/orphan-drug-for-intrahepatic-bile-duct-cancer/) - Discover how PLT012, an innovative anti-CD36 antibody, targets liver cancer's sneaky recruitment stations, starving tumours, dismantling defences, and empowering T-cells to attack.
- [1DH1 and TIBSOVO® (ivosidenib)](https://cholangio.org/1dh1-and-tibsovo-ivosidenib/) - Phase 3 trial sees significant benefit as end point is achieved - The company plans to submit a supplemental new drug application for TIBSOVO® in previously treated IDH1 mutant cholangiocarcinoma by the end of 2019.
- [World-First Pilot Study Explores New Cholangiocarcinoma Treatment](https://cholangio.org/world-first-pilot-study-opens-for-promising-cholangiocarcinoma-treatment-option/) - Join a world-first pilot study testing durvalumab and olaparib for advanced cholangiocarcinoma. Now recruiting at eight sites across Australia. Learn more.
- [Immunotherapy and Chemotherapy Combinations for Cholangiocarcinoma](https://cholangio.org/battle-of-the-checkpoint-pathway/) - FDA approves Keytruda combo for cholangiocarcinoma, expanding options alongside Durvalumab. Explore immunotherapy breakthroughs and chemo combinations.
- [The Luckiest Unlucky Guy - The Matt Reidy Story](https://cholangio.org/the-luckiest-unlucky-guy-the-matt-reidy-story/) - Matt's story shines a light on overcoming cholangiocarcinoma, from diagnosis and treatment to becoming a beacon of hope in the cancer community.
- [Melinda Bachini](https://cholangio.org/melinda-bachini/) - Surviving Cholangiocarcinoma a bile duct cancer is a significant challenge within the cancer world. Melinda Bachini took it on with an amazing supporter community underpinned by willingness and persistence.
- [Graeme Holmes](https://cholangio.org/graeme-holmes/) - My younger brother Graeme begins this very important yet incredibly difficult page within our foundation
- [IDH1-Mutated Cholangiocarcinoma: Understanding PARP Inhibitors and Clinical Trials](https://cholangio.org/idh1-mutated-cholangiocarcinoma-understanding-parp-inhibitors-and-clinical-trials/) - Explore the latest research and clinical trials involving PARP inhibitors for treating IDH1-mutated intrahepatic cholangiocarcinoma.
- [Meet Olaparib: A Key Player in the Fight Against Cancer](https://cholangio.org/meet-olaparib-a-key-player-in-the-fight-against-cancer/) - Discover how Olaparib, a breakthrough PARP inhibitor, enhances cancer treatment for patients with BRCA mutations. Learn more about its benefits and uses.
- [Unlocking the Power of Immunotherapy and Gem/Cis: A Strategic Battle Plan for Fighting Cholangiocarcinoma](https://cholangio.org/unlocking-the-power-of-immunotherapy-and-gem-cis-a-strategic-battle-plan-for-fighting-cholangiocarcinoma/) - Discover the powerful synergy of immunotherapy and Gem/Cis in fighting cholangiocarcinoma and empowering patient survival. Discover the powerful synergy of immunotherapy and Gem/Cis in fighting cholangiocarcinoma and empowering patient survival.
- [Silent Chronic Inflammation and Rising Cholangiocarcinoma, Especially in Younger Patients](https://cholangio.org/silent-chronic-inflammation-and-rising-cholangiocarcinoma-especially-in-younger-patients/) - Investigate the role of poor bile composition in the increasing rates of bile duct, liver, and pancreatic cancers.
- [Meet GEM/CIS/DURVA: A Formidable Trio in the Fight Against Cancer](https://cholangio.org/understanding-gem-cis-durva/) - Discover how GEM/CIS/DURVA works to fight cholangiocarcinoma more effectively
- [Bile Gone Bad-Article 3: Understanding Bile Duct Damage and Bile Duct Cancers](https://cholangio.org/article3-bile-gone-bad/) - Uncover the hidden link between poor bile composition and the alarming rise in bile duct cancer rates.
- [Understanding BRCA1 and BRCA2 in Cholangiocarcinoma](https://cholangio.org/brca1-and-brca2-cholangiocarcinoma/) - Understand BRCA1, BRCA2, and BAP1 mutations in cholangiocarcinoma and their impact on treatment options in simple terms for patients and caregivers.
- [The Checkpoint Pathway: Ipilimumab and Keytruda immunotherapy combination](https://cholangio.org/ipilimumab-and-keytruda-immunotherapy/) - Discover how the combination of Ipilimumab and Keytruda removes the brakes and disguises cancer cells use to evade the immune system, offering new hope through immunotherapy. Learn how Ipilimumab and Keytruda immunotherapy combination work together to empower your immune system. Understand PD-L1, MSI-High, and immune checkpoints
- [Steve Holmes Patient Survivor: 14000 kilometre Cycling Circumnavigation of Australia](https://cholangio.org/steve-holmes-patient-survivor-14000-kilometre-cycling-circumnavigation-of-australia/) - Cycling to Empower patients. Transform survival outcomes. Support our innovative cancer response strategies and make a real difference today. Join the fight against bile duct and bile-related cancers, with Cholangio Challenger and Patient survivor Steve Holmes
- [Michael Flannery: Life Goes On: My Journey with Cholangiocarcinoma](https://cholangio.org/michael-flannery-life-goes-on-my-journey-with-cholangiocarcinoma/) - Read Michael’s inspiring story of how he turned a cholangiocarcinoma diagnosis into hope and action, finding strength, routine, and peace amid cancer treatment.
- [Fixing Broken IDH1 in Cholangiocarcinoma: How Inhibitors Are Changing the Fight](https://cholangio.org/broken-idh1/) - Discover how blocking broken IDH1 with inhibitors is helping cholangiocarcinoma patients. Cholangiocarcinoma Foundation Australia is helping better equip and empower patients to respond more effectively.
- [My walk with Cholangio the Beast](https://cholangio.org/my-walk-with-cholangio-the-beast/) - Hi all my name is Steve and this is my story . . . We are all Immortal until we are not . . . It was a very big shock to discover my own mortality.
- [Bayer enters the immunotherapy race](https://cholangio.org/bayer-enters-the-immunotherapy-race/) - Bayer joins in . . .Loxo is trying to repeat the trick achieved by Merck & Co (known as MSD outside the US and Canada) when it secured approval for PD1 inhibitor Keytruda (pembrolizumab) for all cancers, regardless of location in the body
- [Can Bile Duct Cancer's follow the Melanoma lead](https://cholangio.org/can-bile-duct-cancers-follow-the-melanoma-lead/) - Patients with metastatic melanoma who are treated with pembrolizumab and achieve a complete response (CR) can maintain those responses for an extended period, even after discontinuation of the therapy, according to a new study.
- [Immunotherapy achieves dramatic results](https://cholangio.org/immunotherapy-achieve-dramatic-results/) - Why does immunotherapy achieve dramatic results in some cancer patients but doesn’t help others? It is an urgent and vexing question for many cancer specialists.
- [Elishka's Story](https://cholangio.org/via-elishka/) - Choliangiocarcinoma: miss Cholangio was diagnosed in Oct 2015, after I had symptoms of menopause, it was already 7cm x 8cm in the liver, and wrapped around all three major blood vessels, so no surgery for me
- [CC with Andrew Clacher](https://cholangio.org/cc-with-andrew-clacher/) - “Having a cancer and no one knowing what it is, or what your fate’s going to be, or even if you’re going to be here in the next two years – it really makes you think about your mortality.”
- [Capecitabine Improves Survival of Patients with Rare Cancer by Almost a Quarter](https://cholangio.org/capecitabine-improves-survival-of-patients-with-rare-cancer-by-almost-a-quarter/) - Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? Capecitabine Improves Survival of Patients with Rare Cancer by Almost a QuarterFri, 05/19/2017 – 8:49amby University of Southampton Patients who take capecitabine after surgery for bile duct cancer live for almost
- [Bile Duct Cancer - How it develops and how to prevent it](https://cholangio.org/bile-duct-cancer-how-it-develops-and-how-to-prevent-it/) - Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOW BILE DUCT CANCER DEVELOPS AND HOW IT CAN BE PREVENTED 13 JUN 2017 at 12:00 AM Two different types of cancer can develop in the liver. The more common malignant tumors are
- [Cycling in the Chemo](https://cholangio.org/cycling-in-the-chemo/) - HOMEABOUT UsFB GROUPTRIALSCancer hospital getting chemo patients on bikes to see if it affects treatment outcomesFind more relevant info on TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H
- [Rare Cancers Australia 33 Million Win](https://cholangio.org/rare-cancer-australia-33-million-win/) - The Turnbull Government will provide $33 million to our world class researchers to continue the fight against rare cancers and rare diseases, giving hope to thousands of patients. Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? $33 Million Research
- [Vyriad Expands Phase 1 Trial to Test Voyager-V1](https://cholangio.org/vyriad-expands-phase-1-trial-to-test-voyager-v1/) - Vyriad is expanding its ongoing Phase 1 clinical trial testing Voyager-V1, its lead virotherapy candidate, to include a combination study with PD-L1 inhibitor Bavencio (avelumab) for metastatic colorectal cancer patients. Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? Voyager-V1 in Combination with Bavencio
- [Keytruda may be a miracle cancer drug](https://cholangio.org/keytruda-may-be-a-miracle-cancer-drug/) - Keytruda may be a miracle cancer drug but big questions are being asked about affordability to the people who need it most
- [Keytruda works on Cholangiocarcinoma Patient](https://cholangio.org/keytruda-works-on-cholangiocarcinoma-patient/) - Keytruda works on Cholangiocarcinoma Patient. Adrienne Skinner of Larchmont, N.Y., had an extraordinarily rare and deadly cancer with no standard treatment. She started taking Keytruda in 2014 and her tumor is goneInformation improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject?
- [Adrienne Skinner Cholangiocarcinoma and Keytruda](https://cholangio.org/adrienne-skinner-cholangiocarcinoma-and-keytruda/) - Adrienne Skinner: Living Life to the FullestAdrienne Skinner: Living Life to the FullestThanks to ResearchAmerican Association for Cancer Research Published on Sep 19, 2017 After learning she had metastatic ampullary cancer in 2013, Adrienne Skinner first underwent chemotherapy before turning to a clinical trial of an immunotherapeutic targeting the genetics of her disease. That clinical
- [Cholangiocarcinoma Treatment lmproving](https://cholangio.org/cholangiocarcinoma-treatment-lmproving/) - THE INCIDENCE of cholangiocarcinoma is rising, and effective therapies are urgently needed. Several classes of experimental molecularly targeted agents might meet this challenge, according to Robin Kate Kelley, MD, Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? Future Looks Brighter for
- [Matt Reidy 2017 CCF Annual Conference](https://cholangio.org/matt-reidy-2017-ccf-annual-conference/) - Matt Reidy 2017 CCF Annual Conference – a patients perspective Also Read Matt’s Story on PDF Search more Videos on TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H
- [Cholangiocarcinoma, Robin Katie Kelley MD, 2017 Targeting the Tumor Microenvironment](https://cholangio.org/katie-kelley-md-2017-ccf-annual-conference-targeting-the-tumor-microenvironment-in-cholangiocarcinoma/) - Cholangiocarcinom; Targeting the Tumor Microenvironment in Cholangiocarcinoma and candidate bio markers | T Cells | Antigens and Mutations are all discussed and examine for options Search for more Video options in TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab
- [Cholangiocarcinoma Lipika Goyal - the end of Cancer?](https://cholangio.org/lipika-goyal-2017-ccf-annual-conference-immunotherapy-is-this-the-beginning-of-the-end-of-cancer/) - Cholangiocarcinoma; The Dawn of the Immunotherapy era and the beginning of the end of Cancer? Search more Video options in TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H
- [Cancer Immunotherapy: Will it work for your patient?](https://cholangio.org/cancer-immunotherapy-will-it-work-for-your-patient/) - Immunotherapy, Cancer Immunotherapy: Will it work for your patient? Search for more Video options in TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations olaparib Omico Organisations patient
- [Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy](https://cholangio.org/tim-greten-nih-2018-cholangiocarcinoma-and-immunotherapy/) - Tim Greten, NIH 2018- Cholangiocarcinoma and Immunotherapy Search more video options in TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations olaparib Omico Organisations patient Patient Success Patient
- [Katie Kelley MD 2018 Cholangiocarcinoma Immuno & Targeted Therapies](https://cholangio.org/katie-kelley-md-2018/) - Cholangiocarcinoma immunotherapy at the 2018 CCF Annual Conference Search more Video options in TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations olaparib Omico Organisations patient Patient Success
- [Katie Barker, University of Utah 2018, Cholangiocarcinoma and Nutrition](https://cholangio.org/katie-barker-university-of-utah-2018-cholangiocarcinoma-and-nutrition/) - Cholangiocarcinoma and Nutrition and Gastro Intestinal Cancers information that needs to come in to balance and be incorporated. Search More Videos by TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR
- [Cholangiocarcinoma Trial decision making - Navigating the Clinical Trials Maze](https://cholangio.org/cholangiocarcinoma-trial-decision-making-navigating-the-clinical-trials-maze/) - Cholangiocarcinoma Trial decision making, In collaboration with the doctors of UCSF Medical Center… Search more Video content on TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations olaparib
- [Mayo Clinic on Cholangiocarcinoma 2014](https://cholangio.org/mayo-clinic-on-cholangiocarcinoma-2014/) - Cholangiocarcinoma and the Mayo Clinic hepatobiliary surgeon, Rory Smoot, M.D., discusses cholangiocarcinoma, or cancer of the bile ducts. He explains treatment options and the specialized team of experts at Mayo Clinic who provide care for patients with cholangiocarcinoma…. Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1
- [Cholangiocarcinoma and immunotherapy with Hoosier Cancer Research](https://cholangio.org/cholangiocarcinoma-and-immunotherapy-with-hoosier-cancer-research/) - Cholangiocarcinoma Trial – Learn about a phase II multi-center study evaluating combination immunotherapy for advanced cholangiocarcinoma (bile duct cancer) with pembrolizumab and Sylatron (peginterferon alfa-2b): HCRN GI16-263… Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2
- [Cholangiocarcinoma - About and Options by Mayo Clinic](https://cholangio.org/about-cholangiocarcinoma-with-sumera-h-rizvi/) - Cholangiocarcinoma – Sumera H. Rizvi, MBBS. Gastroenterology fellow at Mayo Clinic discusses the different types of bile duct cancer and their potential treatments. Learn more: http://mayocl.in/2zQIW5Q… Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis
- [Travis Roberts the Concrete Man](https://cholangio.org/travis-roberts-the-concrete-man/) - Cholangiocarcinoma Patient – Not Your Typical Cancer Patient – Cholangiocarcinoma Cancer. Travis introduces himself and explains his personal fight and why he is not your typical cancer patient…. Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab
- [Potential of Immunotherapy for Solid Tumors](https://cholangio.org/immunotherapy-for-cholangiocarcinoma/) - Potential of Immunotherapy for Solid Tumors including Cancers of the Bile Duct – Dr. Lei Zheng… Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations
- [Medical advances improve Cholangiocarcinoma outcomes](https://cholangio.org/outcomes/) - Medical advances improve Cholangiocarcinoma outcomes… Patients with cholangiocarcinoma (bile duct cancer), show no signs of the disease early on. Bile duct cancer usually presents at an advanced stage, which carries a poor prognosis. New advances in medical treatment offer hope. Milind Javle, M.D., associate professor in Gastrointestinal Medical Oncology at MD Anderson Cancer Center, discusses
- [Sarah Bennett &  Linda Fleischer](https://cholangio.org/sarah-bennett-linda-fleischer/) - Cholangiocarcinoma Warrior founder Sarah Bennett and her mother Linda Fleischer founder of Cholangiocarcinoma Caregivers talk about Sarah’s journey with Cholangiocarcinoma and bringing up a young family … Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2
- [Investigating the Biliary RFA Procedure](https://cholangio.org/investigating-the-biliary-rfa-procedure/) - Investigating the Biliary RFA Procedure for Extrahepatic Cholangiocarinoma Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? Investigating Biliary RFA Procedure as an option for Extrahepatic CholangiocarcinomaThis post is a collection of snippets to help get you get you started
- [Surgery for Bile Duct Cancer](https://cholangio.org/surgery-for-bile-duct-cancer/) - Surgery for Bile Duct Cancer, There are 2 general types of surgery for bile duct cancer: potentially curative surgery Information improves our Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? Surgery for Bile Duct Cancer American Cancer Society Full article @ https://www.cancer.org/cancer/bile-duct-cancer/treating/surgery.html
- [Michael Lax Cholangiocarcinoma Patient Story](https://cholangio.org/michael-lax-cholangiocarcinoma-patient-story/) - Michael Lax tells his Cholangiocarcinoma story of hope. In May 2014, Michael was diagnosed with Cholangiocarcinoma. After undergoing surgery, in January 2015, Michael was declared cancer free…. With cancer in his bile duct, Michael Lax sought a second opinion at UCSF after his previous doctors deemed his case inoperable. After undergoing surgery at UCSF, Lax
- [Rivi Litvin Cholangiocarcinoma Patient Story](https://cholangio.org/rivi-litvin-cholangiocarcinoma-patient-story/) - Rivi Litvin’s life turned on its head one day when she found herself jaundiced. Further investigation revealed she had bile duct cancer. A long complicated surgery couldn’t stop the surge of the cancer as it advanced to the liver…. Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers
- [Bile Duct Surgery and Injury](https://cholangio.org/bile-duct-surgery-and-injury/) - Cholangiocarcinoma Surgery – Society of American Gastrointestinal and Endoscopic Surgeons (SAGES)Presented by Horacio J Asbun at the Your Session: Prevention of Bile Duct Injury held during the 2017 SAGES Annual Meeting in Houston, TX on Wednesday, March 22, 2017… Society of American Gastrointestinal and Endoscopic Surgeons (SAGES) Published on Jun 6, 2017 Presented by Horacio
- [Cholangiocarcinoma Patient - Carol's Story](https://cholangio.org/cholangiocarcinoma-patient-carols-story/) - Cholangiocarcinoma Patient – Carol’s Story. Meet Carol and hear her story of being diagnosed with and surviving cholangiocarcinoma. For more information on the Directions for Use for this product please go to … Cholangiocarcinoma Patient – Carol’s Story. Meet Carol and hear her story of being diagnosed with and surviving cholangiocarcinoma. For more information on
- [Cholangiocarcinoma Patient - Porter Fox](https://cholangio.org/cholangiocarcinoma-patient-porter-fox/) - Cholangiocarcinoma Patient Story – A Patients perspective by Perter Fox at the 2018 CCF Annual Conference… Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations
- [Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the Rise](https://cholangio.org/treatment-of-intrahepatic-cholangiocarcinoma-a-disease-on-the-rise/) - Cholangiocarcinoma – Treatment of Intrahepatic Cholangiocarcinoma: A Disease on the Rise, presented By Kate Kelly MD… Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations
- [Cholangiocarcinoma - Bile duct cancer treatment hope a UK perspective](https://cholangio.org/cholangiocarcinoma-bile-duct-cancer-treatment-hope-a-uk-perspective/) - Cholangiocarcinoma – Bile duct cancer treatment hope, this is a UK perspective … Search more Videos on TagsTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy Intrahepatic Keytruda MMR MSI-H Mutations olaparib Omico Organisations
- [Simplifying Immunotherapy terminology](https://cholangio.org/simplifying-immunotherapy-terminology/) - Simplifying Immunotherapy terminology. If you are like me then you are seeing an avalanche of foreign combinations of letters and numbers Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB GROUPTRIALSFind more relevant info on
- [Cholangiocarcinoma - Keytruda as a first line treatment option ?](https://cholangio.org/cholangiocarcinoma-keytruda-as-a-first-line-treatment-option/) - Cholangiocarcinoma – Keytruda as a first line treatment option ? Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB GROUPTRIALSFind more relevant info on TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone
- [Cholangio Immuno Warrior strikes another blow on "Cholangio the Beast"](https://cholangio.org/sandras-story/) - Hi everybody! I think its time for an update because I feel so many of you need some hope. More than ever. I have noticed there are fewer positive news in the last months.
- [As a Cholangiocarcinoma patient living in Australia](https://cholangio.org/aa-cholangiocarcinoma-patient-living-in-australia/) - As a Cholangiocarcinoma patient living in Australia, I want see more immunotherapy knowledge and options Read More from Authors Cancer Vaccines: Training the Immune System to See Cancer Cancer Research Institute Published on Sep 20, 2018 Just like each patient, each cancer is unique. While patients have traditionally been treated in a one-size-fits-all manner, doctors’
- [Chemotherapy and Cholangiocarcinoma](https://cholangio.org/chemotherapy-and-cholangiocarcinoma/) - Chemotherapy and Cholangiocarcinoma – The future direction of Chemotherapy in treating Cholangiocarcinoma, The Cholangiocarcinoma Foundation Published on Mar 6, 2017 Juan Valle, University of Manchester, UK Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB
- [Understanding the Cholangiocarcinoma Process and taking back control](https://cholangio.org/understanding-the-cholangiocarcinoma-process-and-take-back-control/) - Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB GROUPTRIALSFind more relevant info on TAGSTagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial
- [Bile Ducts made easy - bile ducts, liver, stomach, pancreas, duodenum](https://cholangio.org/bile-ducts-made-easy/) - Bile Ducts made easy - An easy to follow video on the relationship between the bile ducts, liver, stomach, pancreas, duodenum and more such as Ampular, Hepatic Artery . . .
- [The Immuno sliver bullet; is Immunotherapy a “silver bullet” or is it hype?](https://cholangio.org/the-immuno-sliver-bullet-immunotherapy-will-be-a-silver-bullet-for-different-types-of-cancer-or-is-it-hype/) - The Immuno sliver bullet; is Immunotherapy a “silver bullet” or is it hype? Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB GROUPTRIALSThe Cancer, The “Silver Bullet” and The hype. Hope for the many is
- [Treatment options improving for Cholangiocarcinoma](https://cholangio.org/cholangiocarcinoma-treatment/) - Treatment options improving for Cholangiocarcinoma with Kate Kelly encouraging clinicians to perform tumor profiling
- [Melinda Bachini's Cholangiocarcinoma Patient Perspective](https://cholangio.org/melinda-bachinis-cholangiocarcinoma-patient-perspective/) - Melinda Bachini's Cholangiocarcinoma Patient Perspective on Adoptive Cell Therapy,
- [Michael Lax sought a second opinion](https://cholangio.org/michael-lax-sought-a-second-opinion-on-cholangiocarcinoma-at-ucsf-after-his-previous-doctors-deemed-his-case-inoperable/) - Michael Lax sought a second opinion on Cholangiocarcinoma at UCSF after his previous doctors deemed his case inoperable Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB GROUPTRIALSMichael Lax was Inoperable and sought a second
- [Dr Charles Drake explains about Exhausted T Cells](https://cholangio.org/dr-charles-drake-explains-about-exhausted-t-cells/) - Dr Charles Drake explains about Exhausted T Cells in immunotherapies and how to switch them back on Shared information is powerful it improves Outcomes What do you think about this article ? can you add? do you know of other articles on this subject? HOMEABOUT UsFB GROUPTRIALSBasics of Immunotherapy with Dr. Charles Drake – NYC
- [Maria](https://cholangio.org/maria/) - Maria Shearer shares her story with Cholangiocarcinoma and founding The Cholangiocarcinoma Awareness Facebook Group Community. A Caregivers Story with a twist. Maria Shearer has endured and she has made a difference, she stepped out and up to help others.
- [MSI Predictive Biomarkers GI](https://cholangio.org/msi-predictive-biomarkers-gi/) - Experts John L. Marshall, MD, and Alan Venook, MD, comment on the evolution of testing for microsatellite instability (MSI) and tumor mutation burden (TMB
- [Progression Free Survival Increases regardless of PDL-1 Expressions](https://cholangio.org/progression-free-survival-increases-regardless-of-pdl-1-expressions/) - unsplash-logoYannis Papanastasopoulos Progression Free Survival Increases regardless of PDL-1 ExpressionsProgression Free Survival Increases regardless of PDL-1 Expressions Foreword on Article by Steve Holmes Better Survival outcomes for those without PDL-1 expression! This is one of those articles that I like to keep an eye on. So many CC patients miss the Imunno options due to
- [Genomic Testing - Know your mutations](https://cholangio.org/molecular-testing/) - Molecular Testing Know your Mutations , Information is powerful it improves outcomes
- [Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference](https://cholangio.org/steve-and-claire-at-the-2019-cholangiocarcinoma-foundation-annual-conference/) - Steve and Claire at the 2019 Cholangiocarcinoma Foundation Annual Conference HOMEABOUT UsFB GROUPTRIALS2019 Cholangiocarcinoma Foundation Annual Conference The Cholangiocarcinoma Foundation’s annual program seeks to develop sustainable participation of the medical and research communities in the field of cholangiocarcinoma, by providing a forum to Increase knowledge central to the prevention, diagnosis, treatment, and cure for cholangiocarcinoma.
- [CCA Introduction pack](https://cholangio.org/intro/) - Cancer breakthrough -The Globally connected patient and caregiver knowledge, experiences and wisdoms - a collective the equips and empowers
- [Susan Randolph Braden's  Can Sir Production](https://cholangio.org/susan-randolph-bradens-can-sir-production/) - March 2019 has come roaring in like a lion, and like a Mama lioness, I have been aggressively battling my cancer predator this month.
- [Immuno 101](https://cholangio.org/immuno-101/) - An extract collection of material and articles that relate to Cholangiocarcinoma
- [Cholangiocarcinoma Network](https://cholangio.org/cholangiocarcinoma-australasia-network/) - Cholangiocarcinoma Australasia Support Network World Wide - Reaching for a Cure
- [Scanxiety a new challenge and a special thank you](https://cholangio.org/scanxiety/) - A Contradiction - It has been what seems like a very long, difficult and unusual battle / journey and with contradictions aside has passed in the blink of an eye.
- [Gem/Cis gets nab-paclitaxel](https://cholangio.org/gem-cis-gets-nab-paclitaxel/) - So, knowing I had no clinical trials for them motivated me to try to write one and think of one that would be something anyone sitting in my clinical could be considered for because that’s what they need.
- [Cholangiocarcinoma and FGFR2](https://cholangio.org/cholangiocarcinoma-and-fgfr2/) - FGF and FGFR2 is a signalling pathway - Fibroblast growth factor signalling uses a fibroblast growth factor receptor (FGFR2) ligand during cell cycle and cell division. The ligand embeds itself into the cell membrane to recieve and deliver growth factors into the cell.
- [Mandy Wallace  - NED Cholangiocarcinoma Patient](https://cholangio.org/mandy-wallace/) - NED 7.5 years - I woke up on the morning of my 39th birthday with severe pain in my upper abdomen. By lunchtime I had to canceled my birthday party and went to hospital Emergency Department instead. The hospital concluded that I had gallbladder issues, so an ultrasound was scheduled and was sent home with given painkillers to await an ultrasound.
- [Cholangiocarcinoma beyond the Blockade](https://cholangio.org/cholangiocarcinoma-beyond-the-blockade/) - Breakthroughs, Options and Opportunities opening up beyond the Check point inhibitor - beyond PD-1 and the T Cell
- [Ariella Chivil, Cancer Patient success - immunotherapy](https://cholangio.org/ariella-chivil/) - Ariella Chivil, an Immunotherapy Advocate, shares her story of self-advocacy and resilience as a young survivor of Hodgkin lymphoma at the 2019 CRI Immunotherapy Summit in Boston.
- [Blood Biopsies increasing MSI-high detection](https://cholangio.org/blood-biopsies/) - A barrier to improved outcomes for many patients is the awareness and testing of MSI status
- [A future look into Immuno-Oncology](https://cholangio.org/a-future-look-into-immuno-oncology/) - what a line up! 2018 Nobel Prize winner James P. Allison, Philip D. Greenberg, M.D and Robert H. Vonderheide, Ph.D., and a fireside chat featured insights and opinions from Bristol-Myers Squibb's Vice President, Head of U.S. Oncology
- [PD-1 / PD-L1 is the Checkpoint Pathway](https://cholangio.org/cca-101-on-pd-1-pd-l1-check-point-pathway/) - Learn how simple the PD-1 / PD-L1 Pathway is to understand - 4 short videos from easy to technical
- [What are Biomarkers](https://cholangio.org/what-are-biomarkers/) - Biomarkers may be used to better understand some of the characteristics of your cancer. Getting tested for biomarkers helps your doctor decide what options are right for you.
- [Treat the Immune not the Cancer](https://cholangio.org/treat-the-immune-not-the-cancer/) - A breakthrough by Dr Jim Allison Nobel Prize winner - we look into the Ipi /Nivo treatment, a two pronged attack on reactivating the T-Cell
- [World Cholangiocarcinoma Day](https://cholangio.org/world-cholangiocarcinoma-day/) - Contribution and Sharing are powerful human elements in the cancer cure equation - this is my contribution.
- [Intrahepatic Cholangiocarcinoma - Diagnosis and Treatment](https://cholangio.org/intrahepatic-cholangiocarcinoma-diagnosis-and-treatment/) - Fralin Biomedical Research Institute Timothy Pawlik, M.D., Ph.D. dives deep into discovering and treating intrahepatic cholangiocarcinoma
- [Look through the impossible](https://cholangio.org/look-through/) - The mind will always try to lead the body back to safety if you let it.
- [CCA Australia July 2022 Progress Update](https://cholangio.org/cca-australia-july-2022-progress-update/) - A starting point for the next generation of cholangiocarcinoma patient success in Australia.
- [Andrea Sheardown](https://cholangio.org/andrea/) - Taking on challenges creates a positive environment and positive is what works for Andrea
- [Second Opinions Save lives](https://cholangio.org/second-opinions/) - Second Opinions are a critical factor in surviving Cholangiocarcinoma a bile duct cancer, it an mean the difference between life and death
- [Durvalumab plus Gemcitabine and Cisplatin in Advanced Biliary Tract Cancer](https://cholangio.org/durvalumab-plus-gemcitabine-and-cisplatin-in-advanced-biliary-tract-cancer/) - The TOPAZ-1 trial evaluated durvalumab plus chemotherapy for patients with advanced biliary tract cancer
- [Lisa Craine](https://cholangio.org/lisa/) - Beating Cholangiocarcinoma, a bile duct cancer. After several resections and lot of determined research Lisa prevailed
- [Lisa Salem-Craine: Cholangio Survivor](https://cholangio.org/lisa-salem-craine/) - I met Steve and Claire Holmes many years ago and connected with them because like Steve, I am a cholangiocarcinoma survivor.
- [Steven West: Cholangio Survivor](https://cholangio.org/steven-west-cholangio-survivor/) - The opportunity to help other newly diagnosed patients help themselves, to understand in a manner that they can mount a robust and effective response is the reward
- [Testimonials](https://cholangio.org/testimonials/) - CCF Australia is a professional ‘Patient-Centric’ and ‘Patient-Led’ Organisation, that places the needs of the patient and their caregiver first. FoundationTestimonials Leading the Future of Cholangiocarcinoma Care—Because No One Else WillSteve2025-01-31T21:40:39+10:00January 31st, 2025|Categories: All, Archived, CCA Progress Reports, Education, News and Updates, Patient Story, Patient Viewpoint, PROFILING, Publication, Testimonials, Updates|Tags: Catie Brown, CCF Team, Claire
- [PBAC Recommends IMFINZI (durvalumab) for Cholangiocarcinoma Patients in Australia](https://cholangio.org/pbac-recommends-imfinzi-durvalumab-for-cholangiocarcinoma-patients-in-australia/) - PBAC endorses IMFINZI (durvalumab) for advanced biliary tract cancer in Australia. First new treatment in 10+ years, boosting survival rates.
- [Merck's Keytruda: A New Hope in Biliary Tract Cancer](https://cholangio.org/mercks-keytruda-a-new-hope-in-biliary-tract-cancer/) - Merck's Keytruda gains FDA approval for biliary tract cancer, promising extended survival, rivaling AstraZeneca’s Imfinzi.
- [The Basics difference between Gem/Cis with Durvalumab vs. Keytruda](https://cholangio.org/the-basics-differences-between-gem-cis-with-durvalumab-vs-keytruda/) - Explore the differences in cancer treatments using Gem/Cis with Durvalumab versus Keytruda, focusing on innovative immunotherapy strategies for patient empowerment.
- [Two brothers Same Diagnosis – 6 Months to Live.](https://cholangio.org/two-brothers-same-diagnosis-6-months-to-live/) - Learn a remarkable terminal cancer survival story of two brothers facing the same dire diagnosis and the journey to beat the odds.
- [Clarifying: What is the Checkpoint Pathway?](https://cholangio.org/clarifying-what-is-the-checkpoint-pathway/) - It is the Successful Handshake that that Occurs between 'PD-1' - the T-Cells Checkpoint Police Officer and 'PD-L1' The Healthy Cells Good Citizen Pass.
- [Exploring HIPEC Surgery: A Potential Ally in Abdominal Cancer Battles](https://cholangio.org/exploring-hipec-surgery-a-potential-ally-in-abdominal-cancer-battles/) - Discover HIPEC Surgery, an innovative treatment for abdominal cancers. Learn how it works, its benefits, and who can benefit from it.
- [Transforming Cancer Perceptions: The Power of Objectivity](https://cholangio.org/transforming-cancer-perceptions-the-power-of-objectivity/) - Putting Cancer in Its Rightful Place — A Journey Toward Empowered Patienthood
- [AstraZeneca's Imfinzi breaks decade Long Drought in Cholangiocarcinoma](https://cholangio.org/astrazenecas-imfinzi-breaks-decade-long-drought-in-cholangiocarcinoma/) - IMFINZI® will serve as a first-line treatment for locally advanced or metastatic cholangiocarcinoma in combination with chemotherapy (Gem/Cis).
- [Cholangiocarcinoma Foundation Australia Partners with Genomic Focus](https://cholangio.org/cholangiocarcinoma-foundation-australia-partners-with-genomic-focus/) - A New Bridge and Access That Helps Better Equip and Empower the Cholangiocarcinoma Patient's Capacity to More Effectively Respond
- [James Hastings Testimonial](https://cholangio.org/james-hastings/) - Hope you guys made it home and sound, just read the patient journal cover to cover, (on my flight to UCL for next round of Nivo) it's incredible,.the detail, the path it forges, the ideas and inspiration. Truly amazing and exactly what is needed to navigate CCA, Brilliant James Hastings - Ireland
- [Brenda's Testimonial](https://cholangio.org/brenda/) - It's been an absolute whirlwind as she was dying in my arms 2 weeks ago and the Drs didn't want to treat her - now we have this option, thankyou!
- [AMG193 Trial targets MTAP Loss](https://cholangio.org/mtap-loss-and-the-amg193-trial/) - Just Imagine a big school where every student (cell) has a special recycling bin called MTAP but for some reason they disappear or the lid wont open the rubbish piles up and...
- [Defeating Biliary Tract Cancer with ARTEMIDE-Biliary01: A New Hope](https://cholangio.org/defeating-biliary-tract-cancer-with-artemide-biliary01-a-new-hope/) - Uncover how ARTEMIDE-Biliary01 could revolutionize biliary tract cancer treatment with innovative adjuvant therapy.

## Pages

- [Cholangiocarcinoma Is Bile Duct Cancer Support](https://cholangio.org/) - The cure for cholangiocarcinoma is in its cause. Find the cause. Accelerate the cure. Improve today’s patient survival now.
- [Order My Patient Navigator Journal](https://cholangio.org/order-my-patient-navigator-journal/) - Order Your Free*Patient Navigator Journal Follow the Process Avoid mistakes Keep Options Open Improve survival Please complete our form belowFirst Name *Last Name *Email *Phone Number *HospitalSurgeonOncologistI am a ... *Please select onePatientCaregiver Postcode *Postal Address *Suburb *State *Please select StateACTNSWNTQLDSATASWAVICNZ How did you hear about us? *Please select oneGoogle searchFacebook/InstagramLinked inAnother Patient or CaregiverMedical
- [Clinical Trials](https://cholangio.org/clinical-trials/) - Clinical trials offer patients the opportunity to become involved in treatments that may well become tomorrow’s standard of care.
- [Donate to Bile Duct Cancer Support](https://cholangio.org/donate/) - Donate to Cholangiocarcinoma Foundation to help bile duct cancer patients understand earlier, act sooner, and support prevention research.
- [Steve Holmes CEO | Cholangiocarcinoma Foundation Australia](https://cholangio.org/steve-holmes-ceo/) - Steve Holmes CEO of Cholangiocarcinoma Foundation Australia leads patient-led systems to improve cholangiocarcinoma response and survival.
- [How We Win](https://cholangio.org/how-we-win-cholangiocarcinoma-survival-system/) - Cholangiocarcinoma Foundation Australia is a patient-led cholangiocarcinoma survival system built inside the biology where response and outcomes are decided.
- [Cholangio Biology](https://cholangio.org/cholangio-biology/) - The First-Principles Premise CANCERBIOLOGY Re-engineering bile composition and flow to eliminate cancer. Scroll to begin The Biological Engine The system already has an architecture. Think of the biliary system as the body’s engine. The Engine Oil Bile keeps the system moving. Bile is the engine oil that supports the physical components and carries nutrients into
- [The Patient Response System](https://cholangio.org/the-patient-response-system/) - The Patient Response System helps cholangiocarcinoma patients preserve options, improve survival, and prevent future patients.
- [Newly Diagnosed Cholangiocarcinoma | First Steps After Bile Duct Cancer Diagnosis](https://cholangio.org/newly-diagnosed-cholangiocarcinoma/) - Newly diagnosed cholangiocarcinoma guide: understand diagnosis, stage, surgery, pathology, genomic profiling, trials, and what to ask early.
- [Bile Duct Cancer Caregiver, Family, and Friends Stories](https://cholangio.org/caregiver-family-and-friends-stories/) - Caregiver, Family, and Friends Stories: a new addition to our Community Culture. You can become the first “Caregiver, Family, or Friend” to share a story.
- [Patient Stories](https://cholangio.org/patient-stories/) - Search for: Steve Holmes: Stage 4 Cholangiocarcinoma Survivor StorySteve Holmes survived stage 4 cholangiocarcinoma after surgery, recurrence and immunotherapy. A patient story revealing the biology and decisions behind survival.By Steve|2026-06-04T18:46:58+10:00June 3rd, 2026|Categories: All, Patient Stories|Tags: Keytruda, Stage 4, Steve Holmes, whipple|0 CommentsRead More Cholangiocarcinoma Survival Pathway | Staying Alive. Staying Yourself.Five years with stage IV
- [Cholangio Ball -Melbourne March 2026](https://cholangio.org/cholangio-ball-melbourne-march-2026/) - 1st Cholangio Ball – Adrian Santaguida LegacyOh What A Night! 28th March 2026 marked our very first Cholangio Ball, held in honour of Adrian Santaguida’s Legacy in Melbourne – an evening of courage, connection, remembrance, and hope. The night was created to honour those we love, remember those we have lost, and stand together in
- [Improve Survival With Cholangiocarcinoma | Close the Diagnosis Gap](https://cholangio.org/improve-survival-with-cholangiocarcinoma/) - Improve survival with cholangiocarcinoma by closing the gap between diagnosis and understanding, asking better questions, and acting earlier.
- [Cholangiocarcinoma Diagnosis Questions | First Appointment Guide](https://cholangio.org/cholangiocarcinoma-diagnosis-questions/) - Cholangiocarcinoma diagnosis questions to ask at your first appointment about staging, surgery, biopsy, IHC, genomic profiling and treatment.
- [Keep Options Open Cholangiocarcinoma Guide](https://cholangio.org/keep-options-open-cholangiocarcinoma/) - Keep options open cholangiocarcinoma guide for patients: protect treatment choices, genomic testing, second opinions, clinical trials and survival pathways.
- [Cholangiocarcinoma Foundation Australia Team](https://cholangio.org/team/) - Cholangiocarcinoma Foundation Australia Team is Patient-led. Built on lived experience and led by founders Claire and Steve Holmes
- [Our Commitment to Cholangiocarcinoma Patients](https://cholangio.org/our-commitment-to-cholangiocarcinoma-patients/) - Our commitment is to help cholangiocarcinoma patients, caregivers, and families understand earlier, respond more effectively, and keep treatment options open.
- [Second Opinion](https://cholangio.org/second-opinion/) - Should I get a Second OpinionThe Foundation collects and organises “Patient Endorsed Medical Professionals,” who specialise in cholangiocarcinoma. Second and third opinions are normal for this cancer. The most important factor is that the doctor can demonstrate current high-flow experience with your exact diagnosis. Contact Email: claire@cholangio.org Phone: 0431 180 783 Second Opinions Save Lives
- [Biliary 101](https://cholangio.org/biliary-101/) - Biliary 101Understanding Cholangiocarcinoma, Bile Duct Cancer, and the Biliary SystemIntroKitchen Table Cholangiocarcinoma, also known as bile duct cancer, is a cancer that develops inside the inner protective lining of the bile ducts. ➤ Waste ➤ Liver ➤ Bile The liver contains around 300 billion hepatocyte cells. These cells act like microscopic factories that produce bile.
- [Light Australia Green](https://cholangio.org/light-australia-green/) - Light Australia Green is Australia’s national initiative for cholangiocarcinoma, connecting patients, clinicians, and communities through coordinated action.
- [Contact us](https://cholangio.org/contact/) - ContactUsPhone Steve Holmes +61 415153522 Claire Holmes +61 431180783 Jill Brown +61 0418 799 926‬ Email steve@cholangio.org claire@cholangio.org jill@cholangio.org Phone number *Email Address *Message SendThank you for your message~ it has been sent.×There was an error trying to send your message. Please try again later.×
- [Loss, legacy and Living](https://cholangio.org/loss-legacy-and-living/) - You have just lost someoneThis is the pathway that helps you continue. Start HereThese five steps help you understand what happened so you know what to do next. Take them one at a time. Step 1. Enter the Pathway Start by capturing what happened so it is not lost. ➤ Order Your Loss, Legacy &
- [New Home](https://cholangio.org/home-2/) - Transform Your ResponseTransform Your ResponsePatient-Led. Built From Lived Experience.Learn to keep options open.Keep options openIntroKeep Options Open Early Understanding → Avoid Mistakes → Keep Options Open → Increase Survival Most patients silently lose options because understanding comes too late. ➤ Start the process ➤ Read ‘Keep Options Open’ tab Early Understanding → Avoid Mistakes →
- [Articles](https://cholangio.org/articles/) - Search for: 1406, 2026 CK7 and CK19 in Bile Duct CancerBy Steve|2026-06-14T17:24:39+10:00June 14th, 2026|Categories: *Precision Medicine, All|Tags: bile Duct Cancer, Bile Flow Bile, Biliary Tract Cancers, Cholangiocarcinoma, Cholangiocytes, CK19, CK7, Cytology Early Detection, Epithelial, IHC Markers|0 CommentsCK7 and CK19 help identify bile duct cells and may support future bile-based monitoring in bile duct cancer and
- [Cholangio.org innovations and projects](https://cholangio.org/cholangio-org-innovations-and-projects/) - Cholangio.org innovations and projects for the patient response system. Explore active projects improving pathways, navigation, and clinical outcomes.
- [Histotripsy Australia - A Patient Empowered Response](https://cholangio.org/histotripsy-australia/) - Histotripsy Australia is a patient-led initiative by the Cholangiocarcinoma Foundation Australia to install five histotripsy systems in major hospitals by 2026.
- [Privacy Policy](https://cholangio.org/privacy-policy/) - Privacy PolicyLast updated: 30 August 2025 Cholangiocarcinoma Foundation Australia (“we”, “our”, “us”) respects your privacy and is committed to protecting your personal information. This Privacy Policy explains how we collect, use, disclose and store your personal information in line with the Privacy Act 1988 (Cth) (Australia), the Privacy Act 2020 (New Zealand), and other applicable
- [How We Began - Cholangiocarcinoma Foundation Australia](https://cholangio.org/how-we-began/) - How we began: two brothers, one loss, one survival. From Graeme’s memory to Steve’s victory, a patient-led system was born to outpace cholangiocarcinoma
- [Beth's Cholangio Journey](https://cholangio.org/beths-cholangio-journey/) - Beth Cholangio Story – A Journey of Strength and Hope In this powerful and deeply personal video, Beth Ivamey shares her journey of cholangiocarcinoma with honesty, courage, and grace. From diagnosis to treatment and everything in between, Beth opens up about the challenges she’s faced and the resilience she’s discovered along the way. Her story
- [Find a Specialist](https://cholangio.org/find-a-specialist/) - Find a Medical ProfessionalPatient-Endorsed Registry. Please email Claire to receive our Patient Endorsed Medical Registry claire@cholangio.org If you would like to endorse your medical professional or allied professional Registry Add Medical Professional
- [Events](https://cholangio.org/events/) - Sharing and contributing is a powerful almost immeasurable human asset especially when it comes to fighting cancer, CCF Australia works hard to bring out the best we have to offer View Event CalendarPlease bookmark this page for your convenience ConferencesView details for 2023 The 10th Annual Cholangiocarcinoma Foundation Conference Welcome to the 10th Annual Cholangiocarcinoma
- [VIDEOS -Patient Stories](https://cholangio.org/videos-patient-stories/)
- [Questions Toolkit](https://cholangio.org/questions/) - Questions empower your decision making and outcomes; Know what questions should be asked in the order they should be asked CCF Australia CCA Questions ToolkitKnow what Questions to AskEDUCATE – EQUIP – EMPOWERIntroduction Questions empower learning Questions are a very important way of engaging and understanding the diagnosis and becoming more confident in decision-making. It
- [Our Board of Directors](https://cholangio.org/board/) - OurBoardMeet the board members and directors that guide this important mission to its fullest potential Steve Holmes Managing Director ×Steve Holmes Name: Steve Holmes Role: Managing Director and Chief Executive Organisation: Cholangiocarcinoma Foundation Australia Professional Profile: Steve is the Founder, Managing Director, & CEO of the Cholangiocarcinoma Foundation Australia, he is also a late-stage, Stage
- [CholangioMentors](https://cholangio.org/cholangiomentors/) - CholangioMentors creates connections that enable one-on-one support among cholangiocarcinoma warriors, survivors, and caregivers Get InvolvedContact Us Request MentorBe A MentorBe A VolunteerTeam Members Do you prefer to speak to one of our team? Steve Holmes Groups Facebook members provide a constructive safe space to discuss and learn Cholangiocarcinoma Australasia Community: For Patients and Caregivers Cholangiocarcinoma
- [Cholangio Heroes](https://cholangio.org/heros/) - Remembering Our Brave Hero’sRemembering Our Brave Hero’s“The fabric of life is woven from obstacles, possibilities, and memories we are fortunate enough to be gifted.” “The fabric of life is woven from obstacles, possibilities, and the memories we are fortunate enough to be gifted.” Cholangio Hero’s The Foundation has created a home for members who have
- [New Home](https://cholangio.org/new-home/) - Just yesterday, I was a person. Today, I am a patient.Endorse A ProfessionalHello My name is Steve Holmes — I’m a patient, survivor, and co-founder (with my wife Claire) of this patient-led, caregiver-powered foundation. I will now help guide you through this, so you can get the strongest possible start. You didn’t plan for this
- [Our Story](https://cholangio.org/how-it-began/) - OurStoryTwo Brothers – How It BeganFrom left to right: (Claire and Steve Holmes 2024), (Brothers Steve and Graeme -1967) and Graeme Holmes RIP 2014 Graeme and Steve Holmes Two brothers same aggressive terminal cancer and 6 months to live.Steve survived, but his younger brother Graeme did not. Steve’s survival became part of a modern-day medical breakthrough,
- [Fundraising](https://cholangio.org/fundraising/) - Every patient deserves a pathway to survival. Become a Cholangio FUNraiser host an event or challenge to support vital research into patient response strategies
- [Professionals](https://cholangio.org/professionals/) - Resources For: Medical & Allied Professionals, Healthcare & ResearchersTHE CHOLANGIOCARCINOMA NEXUS: The Convergence of Great Minds in Science, Innovation, Medical Expertise, Lived Experience, and Community—A Constant Catalyst in the Evolution of Success. ‘Chol’ means bile ➡ ‘angio’ means vessel or ducts ➡ ‘carcinoma’ means a cancer that originates in the protective layer that lines the
- [Meetings](https://cholangio.org/meetings/) - Meetings & EventsScroll Menu Left to See All Tabs FeaturedZoom for All Patients onlyCaregivers OnlyIn PersonZoom Edu's Invitation Only Event Medical and Industry Professionals Only Recorded for public viewing The meetings will be notified on the Facebook Group and Page. Email notifications coming soon The meetings will be notified on the Facebook Group and Page.
- [Care Coordinators Hospital Guide](https://cholangio.org/care-coordinators-hospital-manuscript/) - Care Coordinators Hospital Guide Updated Manuscript Coming soon please contact admin@cholangio.org
- [Cholangiocarcinoma Nexus](https://cholangio.org/cholangiocarcinoma-nexus/) - Welcome To TheCHOLANGIOCARCINOMA NEXUSThe Convergence of Science, Innovation, Medical Expertise, Lived Experience, and Community An initiative by Cholangiocarcinoma Foundation Australia ‘Chol’ means bile ➡ ‘angio’ means vessel or ducts ➡ ‘carcinoma’ means a cancer that originates in the protective layer that lines the ducts (the epithelial layer). In other words, cholangiocarcinoma is a cancer that
- [Endorse A Professional](https://cholangio.org/endorse-a-professional/) - ImportantPatients Please Add Your Medical Professional Endorse A Professional
- [Mandy Wallace](https://cholangio.org/mandy-wallace-archived/)
- [Biomarkers Matter](https://cholangio.org/biomarkers-matter/) - BiomarkersMatterBiomarker testing can open the door to additional, personalized treatment options, including clinical trials. Biomarkers | Targeted therapy | Immunotherapy | IHC Testing | Molecular Profiling | Pdf’s | Articles | Common Biomarkers | Patient Biomarker Stories Get the Right Tests & Find the Right Treatment for CholangiocarcinomaBiomarker testing can open the door to additional, personalized treatment
- [BileLink](https://cholangio.org/bilelink/) - Patient-Centric & Patient-Led ResourceBILE AND GI CANCERSEmpower the Patient – Increase Survival.Comprehensive Response ResourceLiver | GallBladder | Bile Duct | Pancreatic Ampulla | Duodenum | JudenumBILElinkPatient-Centric & Patient-Led ResourceFor BILE-RELATED CANCERSEmpower the Patient – Increase Survival.Liver | GallBladder | Bile Duct | Pancreatic Ampulla | Duodenum | JudenumPatients & Caregivers Fast Links Easy Links To
- [Bile Gone Bad](https://cholangio.org/bile-gone-bad/) - Empower Our Patients – Increase Their Survival. Empower their Community and Workplaces – Exponentially Increase Survival “We, work to ensure that today’s research and knowledge are fully utilised and integrated into today’s patient toolkit. By simplifying both the science and the knowledge into a format that patients and caregivers can understand and effectively apply, we
- [Care Coordinators Updates](https://cholangio.org/coordinator-updates/) - Coordinator Updates coming soon…
- [Treatment Options](https://cholangio.org/treatment-options/) - TreatmentOptionsAfter cholangiocarcinoma is found and staged, your cancer care team will discuss your treatment options with you. It is important for you to take time and think about your choices. The treatment of cholangiocarcinoma depends on the size and location of the tumor, whether your cancer has spread, your overall health, anticipated side effects, and the
- [Staging](https://cholangio.org/staging/) - Staging andGradingAfter a person is diagnosed, doctors will try to figure out if it has spread, and if so, how far. After a person is diagnosed, doctors will try to figure out if it has spread, and if so, how far. This process is called staging. The stage of a cancer describes how much cancer is
- [Key Statistics](https://cholangio.org/key-statistics/) - KeyStatistics Around 1300 people in Australia are diagnosed with Cholangiocarcinoma each year About 23,000 people in the United States develop cholangiocarcinoma each year. Cholangiocarcinoma is much more common in Asia, mostly because of a common parasitic infection of the bile duct. Almost 2 out of 3 people with cholangiocarcinoma are 65 or older when it is found. The average
- [Symptoms](https://cholangio.org/symptoms/) - TheSymptomsCancer in different areas may cause different symptoms and can also be vague or similar to other symptoms Cancer in different areas may cause different symptoms Chills Clay-colored stools Dark urine Fatigue Fever Itching (pruritus) Loss of appetite Nausea Pain in the upper right abdomen that may radiate to the back Weight Loss Yellowing of
- [Risk factors](https://cholangio.org/risk-factors/) - RiskFactorsSlide menu to left to show all tabs Primary Sclerosing CholangitisLiver fluke infectionsViral HepatitisCirrhosisBile Duct StonesAbnormalities Choledochal CystsOther Primary Sclerosing Cholangitis Primary Sclerosing Cholangitis A condition in which inflammation of the bile duct (cholangitis) leads to the formation of scar tissue (sclerosis) and an increased risk of cholangiocarcinoma. The cause of the inflammation is not
- [Clinical Trials Submission Portal](https://cholangio.org/clinical-trials-submission-portal/) - Clinical trials Portal Clinical Trials Submission PortalWelcome to Our Clinical Trials Submission Portal Contribute to Clinical Research: If you are part of an organization conducting clinical trials, we invite you to share your studies with us. Our platform reaches a dedicated audience of cholangiocarcinoma patients and their healthcare providers. To ensure clarity and accessibility, please
- [Testimonials](https://cholangio.org/testimonials-usa/) - PatientTestimonialsLived Experiences from patients who have are sharing forward for the benefit of those who become newly diagnosed patients Find a Mentor | Become a Mentor Jessica ThomasA diagnosis of cholangiocarcinoma comes with the weird dichotomy that your world both expands and shrinks at the same time. Life becomes about staging, scans, chemo, fear, hope,
- [Resources](https://cholangio.org/resources/) - Organisations +ResourcesPlease note that the Cholangiocarcinoma Foundation does not endorse any of the specific organisations listed on this page This section is USA/Internationals and will be populated with Australian material American Cancer Fund American Cancer Society American Liver Foundation American Society of Clinical Oncology (ASCO) AMMF – The Cholangiocarcinoma Charity (UK) Bile Duct Cancer Support &
- [Biomarker Stories](https://cholangio.org/biomarker-stories/) - BiomarkerStoriesyou may have heard referred to as “molecular testing” or “genomic testing,” is done by obtaining a small amount of tissue (called a biopsy) from a patient’s tumor Common Biomarkers Biomarker testing, which you may have heard referred to as “molecular testing” or “genomic testing,” is done by obtaining a small amount of tissue
- [Understanding Your Clinical Trial Results](https://cholangio.org/understanding-your-clinical-trial-results/) - Understanding Yourclinical trial resultsThe most powerful and positive force in medicine is that of a self-advocating patient! “The most powerful and positive force in medicine, is that of a self-advocating patient!” CCF USA’s Director of Advocacy, Melinda Bachini uses that statement as a signature on every email she sends. As a 11-year survivor of Cholangiocarcinoma,
- [News and Media Release](https://cholangio.org/news/) - News Reel 2902, 2024 Cholangiocarcinoma Foundation Australia Partners with Genomic FocusBy Steve|2024-10-11T16:07:33+10:00February 29th, 2024|Categories: Media, Z-Legacy|Tags: News Update, Partnership|0 CommentsA New Bridge and Access That Helps Better Equip and Empower the Cholangiocarcinoma Patient's Capacity to More Effectively Respond Read More 2908, 2023 PBAC Recommends IMFINZI (durvalumab) for Cholangiocarcinoma Patients in AustraliaBy Steve|2024-10-11T16:07:53+10:00August 29th, 2023|Categories: All,
- [Research - Archived](https://cholangio.org/research2/) - RESEARCH CONTACT DETAILS Email: Steve Ph: +61415153522 FB Messenger FB Page Steveholmes General ResourcesDictionary Pubmed Pubmed Home About CCAArticles, Journals, Pubs Targeting Cholangiocarcinoma August 2020: All patients with a biopsy should have next-generation sequencing. – [Read More] FDA priority review for bile duct May 2020: Incyte’s new drug pemigatinib has been given a priority review
- [Corporate Partners](https://cholangio.org/corporate-partners/) - Foundation Partners Genomic Focus Connecting cancer patients and their caregivers with up-to-date information about treatments and clinical trials that target their unique cancer. Our commitment and solutions stem from a deep-rooted personal story. Genomic Focus
- [Cholangiocarcinoma Patient Mutation Toolkit](https://cholangio.org/mutations/) - Know your mutations; Simplifying and Demystifying Genetic mistakes that become mutations and cancers CCF Australia CCA Mutation ToolkitMutations Simplified + Trial NavigatorEDUCATE – EQUIP – EMPOWERIntroduction The Patient Mutation Toolkit: Empowering Your Cancer Journey Designed by those who’ve walked this path – experienced patients and caregivers – the Patient Mutation Toolkit is your gateway to
- [Cholangiocarcinoma Articles Library](https://cholangio.org/library/) - HOMEABOUT UsFB GROUPTRIALSLife is Evolutionary with or without me – Sharing information is what I can do, it is Powerful and Evolutionary for all. CCA Articles LibraryArticles General Articles: Genereal TIPS: For Patients with Rare Cancer, Tips on Finding Expert Treatment Wagner also recommends that patients seek out physicians with experience in their particular disease.
- [Cholangiocarcinoma Patient Registry](https://cholangio.org/genomic-profile/) - For Australian and New Zealand Patients to participate in building research that helps improve our diagnosis outcomes
- [Riding the Canefields Gold Coast](https://cholangio.org/riding-the-canefields-gold-coast/) - Cycling for N.E.DFund Steve’s InitiativesFollow, Ride with, or Support Steve through the Northern Gold Coast Cance fields and Estuaries; FundingPatient Empowerment Projects saves lives today. Steve’s Oncologist Matt’ said I will get you back on that bike and against all odds Matt pulled it off, so Steve rides for Matt and anyone else lying on
- [NEW HP -1](https://cholangio.org/home0/) - Latest UpdatesDo Biopsy’s Seed Cancer | Add an Oncologist | Hypercalcemia in Cholangio Welcome to the Cholangiocarcinoma Foundation AustraliaWe exist to help better equip and empower your capacity to mount an effective, robust response from the moment of diagnosis. CCF Australia is a professional ‘Patient-Centric’ and ‘Patient-Led’ Organisation, that places the needs of the patient
- [Updates](https://cholangio.org/updates/) - Corrections &UpdatesPatient Journal No updates to report
- [Clinical trial finder by mutation type](https://cholangio.org/clinical-trial-finder-by-mutation-type/) - Click here Match mutation to clinical trial
- [Downloads](https://cholangio.org/downloads/) - DownloadsLast updated 23rd February 2023 CCA Oncologists (Pdf)
- [CCAHope](https://cholangio.org/ccahope/) - Click here to download image to print
- [Volunteer Program](https://cholangio.org/volunteer-program/) - If you are able to help us launch a program then please contact Mandy Wallace or Claire Holmes to have a chat about how we can. Australianvolunteer programWe do not have a program started here in Australia (or New Zealand). If you are able to help us launch a program then please contact Mandy Wallace or Claire Holmes to
- [Publications](https://cholangio.org/publications/) - Complimentarybook100 Questions & Answers About Cholangiocarcinoma, Gallbladder and Bile Duct Cancers (2nd Edition) by Dr. Ghassan Abou-Alfa & Dr. Eileen M. O’Reilly 100 Questions & Answers About Cholangiocarcinoma, Gallbladder and Bile Duct Cancers (2nd Edition) by Dr. Ghassan Abou-Alfa & Dr. Eileen M. O’ReillyNo one with biliary cancer needs to fight this disease alone. 100 Questions & Answers About Cholangiocarcinoma,
- [Become a volunteer fundraiser](https://cholangio.org/become-a-volunteer-fundraiser/) - CCF depends on volunteers like you to increase cholangiocarcinoma awareness and raise funding for CCF’s vital programs. Become a Volunteer FundraiserCCF depends on volunteers like you to increase cholangiocarcinoma awareness and raise funding for CCF’s vital programs. The Foundation recognises the important role these volunteers play in advancing our work. There are several ways you
- [Learn More About Clinical Trials](https://cholangio.org/learn-more-about-clinical-trials/) - Learn More About Clinical TrialsThese Patient-friendly clinical trial videos from our friends at Stand Up To Cancer. Clinical TrialsTrial PhasesInformed ConsentRandomised controlled trialsPlacebosStandard of careBiopsies
- [Video Resources](https://cholangio.org/video-resources/) - View CCF Youtube Video Channel Biomarkers MatterFor Patients Information by Cholangiocarcinoma Foundation Biomarker testing can open the door to additional, personalized treatment options, including clinical trials. If you’ve been diagnosed with cholangiocarcinoma, it is important that you and your doctor get as much information as possible about your tumor. Knowing your tumor’s biomarkers will help you both
- [Cholangio What](https://cholangio.org/cholangio-what/) - The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of
- [Staging Intrahepatic Cholangiocarcinoma](https://cholangio.org/staging-intrahepatic-cholangiocarcinoma/) - Intrahepatic cholangiocarcinoma develops in the smaller bile duct branches inside the liver. It can sometimes be confused with cancer that starts in the liver cells, Staging Intrahepatic CholangiocarcinomaIntrahepatic cholangiocarcinoma, meaning within the bile ducts that are within the liver. Intrahepatic cholangiocarcinoma develops in the smaller bile duct branches inside the liver. It can sometimes be confused with cancer
- [Staging Perihilar Cholangiocarcinoma](https://cholangio.org/staging-perihilar-cholangiocarcinoma/) - Perihilar (also called hilar) cholangiocarcinomas develop at the hilum, where the hepatic ducts have joined and are just leaving the liver. Staging Perihilar (Hilar or Klatskin Tumor) CholangiocarcinomaPerihilar is an extrahepatic cholangiocarcinoma, meaning within the bile ducts that are outside the liver. Perihilar (also called hilar) cholangiocarcinomas develop at the hilum, where the hepatic ducts have joined
- [Staging Distal Cholangiocarcinoma](https://cholangio.org/staging-distal-cholangiocarcinoma/) - Distal cholangiocarcinomas are found further down the bile duct, closer to the small intestine and pancreas. Because these bile ducts are outside of the liver, Staging Distal CholangiocarcinomaDistal is an extrahepatic cholangiocarcinoma, meaning within the bile ducts that are outside the liver. Distal cholangiocarcinomas are found further down the bile duct, closer to the small intestine and
- [Become a CCF Volunteer](https://cholangio.org/become-a-ccf-volunteer/) - Become a CCF VolunteerThank you for your interest in volunteering with the Foundation. After you complete this form, you will receive an email detailing the next steps in becoming a CCF volunteer. If at any point in the application process you would like to speak to our Volunteer Coordinator, please contact Mandy Wallace by email
- [Become a Mentor](https://cholangio.org/become-a-mentor/) - Request to become a MentorThank you for your interest in CholangioConnect. Please take a moment to answer the following questions so that we can match you with a CholangioConnect Mentor with a similar profile. First Name *Last Name *Email Address *Confirm Email Address *Phone Number *Best time to callYour Location New Zealand South IslandNew Zealand
- [Request a mentor form](https://cholangio.org/request-a-mentor-form/) - Request a MentorThank you for your interest in CholangioConnect. Please take a moment to answer the following questions so that we can match you with a CholangioConnect Mentor with a similar profile. First Name *Last Name *Email Address *Confirm Email Address *Phone Number *Best time to callYour Location New Zealand South IslandNew Zealand North IslandNorthern
- [Research](https://cholangio.org/research/) - ResearchCCA Publications, Studies, Clinical Trials and related Articles Subscribe To Our UpdatesQuick Find Menu Australia Organisations Groups Cancer Hospitals Government Resources New Zealand Organisations Groups Cancer Hospitals Government Resources USA Organisations Groups Cancer Hospitals Government Resources UK Organisations Groups Cancer Hospitals Government Resources Latest Leading the Future of Cholangiocarcinoma Care—Because No One Else WillSteve2025-01-31T21:40:39+10:00Categories: All,
- [Anatomy of the Bile Ducts](https://cholangio.org/anatomy-of-the-bile-ducts/)
- [Cholangio 101](https://cholangio.org/cholangio-101/) - Cholangio 101CHOLANGIOCARCINOMA (CCA) Cancer within the bile duct, thereafter the primary location of origin further defines the subtype of your specific Cholangiocarcinoma diagnosis. Pronunciation & Meaning Pronunciation Cholangiocarcinoma is the clinical name for Bile Duct Cancer. The easiest way to pronounce this name is to first break it in half, ie: Cholangio + carcinoma Chol
- [Treatments for Cholangiocarcinoma](https://cholangio.org/treatment/) - Please ensure that you are familiar with the CCA Patient Toolkit before reading the page contentPlease ensure that you are familiar with the Patient Toolkit before reading this page.Treatment 101Treatments are “interventions” – ie interfering with the current course or direction. Cancer Treatment interventions fall into two categories. Physical: Surgery and or Radiation therapy Drugs: Chemotherapy or
- [Videos - Check Point Inhibitors](https://cholangio.org/videos-pdl1/) - CCA EDUCATECCA Australasia simplifying and delivering targeted information to Newly Diagnosed Patients and Caregivers. Equipping and Empowering them with todays potentially life saving information, TODAY! CHOLANGIOCARCINOMA AUSTRALASIA COMPILED BY Steve Holmes Email: Steve Ph: +61415153522 FB Messenger FB Page Steveholmes RESEARCH | MUTATIONS | TREATMENT | IMMUNOLOGYVIDEO LIBARYCHECKPOINT INHIBITOR – PD-1 /PD-L1 PATHWAY Keynote Trial
- [Login](https://cholangio.org/login/) - Contributor LoginWelcome backUsername or EmailPasswordLog in Cholangio 101 Patient to Patient – Caregiver to Caregiver Connecting and sharing Knowledge, Experiences and Wisdoms
- [Members](https://cholangio.org/members/)
- [VIDEOS - Surgery](https://cholangio.org/videos-surgery/) - CCA EDUCATECCA Australasia simplifying and delivering targeted information to Newly Diagnosed Patients and Caregivers. Equipping and Empowering them with todays potentially life saving information, TODAY! CHOLANGIOCARCINOMA AUSTRALASIA COMPILED BY Steve Holmes Email: Steve Ph: +61415153522 FB Messenger FB Page Steveholmes RESEARCH | MUTATIONS | TREATMENT | IMMUNOLOGYCCA MissionVIDEO LIBARYSURGERY [ess_grid alias=”vid-surg”]
- [Matt's Mutation Serach in Beta #sagh/1](https://cholangio.org/sagh-01/) - Cholangiocarcinoma Clinical Trial Finder Search Mutations by Matt Reidy Search Uncheck all A ABL1 ANKRD11 APC ARID1A ARID1B ARID2 ASXL1 ATM ATR AXIN1B BAP1 BCOR BRAF BRD4C CASP8 CDH1 CDKN2A CDKN2Ap14ARF CDKN2Ap16INK4A CIC CSF3R CTNNB1D DAXX DNMT3A DOT1LE EGFR EPHA5 ERBB3 ERCC3F FAT1 FGFR2 FOXP1G - I GATA1 IDH1 IDH2 IGF1RK KDM5A KEAP1 KRASM MAP2K1 MAP2K4
- [Login Customizer](https://cholangio.org/login-customizer/) - This page is used for Login Customizer plugin. It will not be visible to your readers. Do not delete it.
- [Immunotherapy Video Library](https://cholangio.org/immuno-video/) - [ess_grid alias="vid_immuno"]
- [Cholangiocarcinoma Australasia connects with the Cholangiocarcinoma Foundation](https://cholangio.org/ccf-stats/) - HOMEABOUT UsFB GROUPTRIALSCCA – Cholangiocarcinoma Australasia connects with the “Cholangiocarcinoma Foundation” to discover what they know on the subject of Cholangiocarcinoma. The ‘Cholangiocarcinoma Foundation’ explains Page material via https://cholangiocarcinoma.org/about-us/ Cholangiocarcinoma (CCA) is a rare form of cancer that originates from the cells lining the bile ducts. It is classified as a heterogeneous group of three anatomically
- [AUSTRALIA](https://cholangio.org/australia/) - Taking a closer look at Cholangiocarcinoma “Down Under” HOMEABOUT UsFB GROUPTRIALSAustraliaNetworks & Groups Australia – CCA Facebook Page Australia -CCA Facebook Group Organsations | Websites | Pages Newly Diagnosed Patients – Helpful Steps GI Cancer Website Rare Cancers Website Cancer Council/ Bile Duct Pancare/ Biliary Cancer ACRF/ On Bile Duct Cancer Australian Trials Trials within
- [Cholangiocarcinoma Australasia connects with the Mayo Clinic](https://cholangio.org/mayo-clinic/) - HOMEABOUT UsFB GROUPTRIALSCCA – Cholangiocarcinoma Australasia connects with the “The Mayo Clinic” to discover what they know on the subject of Cholangiocarcinoma. Mayo Clinic USA defines Cholangiocarcinoma? Overview Content via https://www.mayoclinic.org/about-this-site/welcome Cholangiocarcinoma is cancer that forms in the slender tubes (bile ducts) that carry the digestive fluid bile. Bile ducts connect your liver to your
- [Cholangiocarcinoma Australasia connects with National Cancer Institute](https://cholangio.org/national-cancer-institute/) - HOMEABOUT UsFB GROUPTRIALSCCA – Cholangiocarcinoma Australasia connects with the “National Cancer Institute” (USA) to discover what they know on the subject of Cholangiocarcinoma. There are different types of treatment for patients with bile duct cancer. Different types of treatments are available for patients with bile duct cancer. Some treatments are standard (the currently used treatment),
- [Cholangiocarcinoma Australasia connects with Rare Cancers Australia](https://cholangio.org/rare-cancers-australia/) - HOMEABOUT UsFB GROUPTRIALS CCA – Cholangiocarcinoma Australasia connects with the “Rare Cancers Australia” to discover what they know on the subject of Cholangiocarcinoma. General Information About Bile Duct Cancer KEY POINTS Bile duct cancer is a rare disease in which malignant (cancer) cells form in the bile ducts. Having colitis or certain liver diseases can
- [Cholangiocarcinoma Australasia connects with AMMF UK](https://cholangio.org/ammf-cholngiocarcinoma/) - HOMEABOUT UsFB GROUPTRIALSCCA – Cholangiocarcinoma Australasia connects with “AMMF UK” to discover what they know on the subject of Cholangiocarcinoma. AMMF UK defines Cholangiocarcinoma? (Cholangiocarcinoma is pronounced kol-an-gee-oh-car-sin-oh-ma). Cholangiocarcinoma, or bile duct cancer, is a primary liver cancer that arises within the biliary system. It can occur in the small bile ducts within the liver,
- [Cholangiocarcinoma Australasia connects to Cancer.org](https://cholangio.org/cancer-org-cholangiocarcinoma/) - CCA – Cholangiocarcinoma Australasia connects with the “Cancer.org” to discover what they know on the subject of Cholangiocarcinoma. Cancer.org explains “What Is Bile Duct Cancer?” Cancer starts when cells in the body begin to grow out of control. Cells in nearly any part of the body can become cancer, and can spread to other areas
- [social](https://cholangio.org/social/) - [ff id="2"]
- [UK & EUROPE](https://cholangio.org/uk-europe/) - HOMEABOUT UsFB GROUPTRIALSPlease Contribute Do you have information/ content for this page? [contact-form-7 id=”113″ title=”Can you add to this page”] Find more info in TAGS TagsAdoptive Sell Therapy Australia BAP1 bile Duct Cancer Bile Gone Bad Biomarkers BRCA1 BRCA2 Car-T Cells Catie Brown Chemotherapy Clinical Trial dmmr durvalumab FGFR2 Gem/Cis Gem/Cis/Durva How iCCA IDH1 immunotherapy
- [Password Reset](https://cholangio.org/password-reset/) - [bbp-lost-pass]
- [Register Here](https://cholangio.org/register-here/) - [bbp-register]
- [Cholangiocarcinoma USA](https://cholangio.org/usa/) - Thoughts are Things – Capture them before their time has passed – Feed them well and give them life. HOMEABOUT UsFB GROUPTRIALSUSA Please Contribute Please Contribute [contact-form-7 id=”113″ title=”Can you add to this page”]Organisations -Groups If you have a new group or information that can be added to this (USA) page please add it into the
- [THAILAND](https://cholangio.org/thailand/) - THAILAND Organisations, Networks and Groups CCA Foundation of Thailand Please Contribute [contact-form-7 id="113" title="Can you add to this page"]
- [Videos - Immunotherapy](https://cholangio.org/videos_immuno/) - [ess_grid alias=”vid_immuno”]

## Events

- [Cholangio Catchup - New Zealand 2026](https://cholangio.org/event/get-together-new-zealand-2026/) - Come and join us … You’re Invited to a Cholangio Get-together in Taupo, New Zealand ! Steve, Claire, Jill & Mandy would love to welcome our amazing Cholangio Patients and Caregivers to a special get-together in TAUPO, NEW ZEALAND! Join us on ~ Friday 31 July & Saturday 1 August 2026 Hilton Lake Taupo, Taupo
- [Catchup - Sydney 2026](https://cholangio.org/event/catchup-sydney-2026/) - Come and join us … You’re Invited (and bring a friend) to a Cholangio Catch Up ! Steve, Claire, and Jill would love to welcome our amazing Cholangio Patients and Caregivers to a special get-together in SYDNEY! Join us on ~ Saturday 4 July 2026 Stamford Plaza Hotel, Sydney Airport Morning Session 10:00 – 12.00
- [Catch Up - Sydney 2025](https://cholangio.org/event/catch-up-sydney-2025/) - Come and join us ... You're Invited (and bring a friend) to a Cholangio Get-Together ! Steve and I would love to welcome our amazing Cholangio Patients and Caregivers to a special get-together in SYDNEY !
- [Cholangio Ball - Adrian Santaguida Legacy](https://cholangio.org/event/cholangio-ball/) - Come and join us at the inaugural Cholangio Ball honouring Adrian Santaguida’s legacy …✨ Accommodation Partner ✨ If you’re looking for somewhere comfortable and convenient to stay, check out Mercure WestWaters – Caroline Springs. A beautiful spot with modern rooms, dining options and easy access into Melbourne. Call them directly on (03) 8358 0555 to book
- [Luke's Cholangio Challenge](https://cholangio.org/event/lukes-cholangio-challenge/) - Support Luke as He Takes on the Ultimate Challenge ~ 5KM EVERY HOUR FOR 24 HOURS ! After losing his fiancee to a rare cancer in 2023, Luke is putting his body on the line to raise awareness ...
- [Light Australia Green](https://cholangio.org/event/world-cholangiocarcinoma-day/) - Light Australia Green is a national show of solidarity for people affected by cholangiocarcinoma. On 19 February 2026, landmarks and communities across Australia will light up green to raise awareness for this rare and aggressive cancer, honour those we have lost, and stand with patients, families and caregivers. It’s about connection, community, and letting patients
- [Catch Up - Sunshine Coast 2025](https://cholangio.org/event/catch-up-sunshine-coast/) - Come and join us … You’re Invited (and bring a friend) to a Cholangio Catch Up ! Steve and I would love to welcome our amazing Cholangio Patients and Caregivers to a special get-together in SUNSHINE COAST !
- [Catch Up - Brisbane 2025](https://cholangio.org/event/get-together-brisbane-2025/) - Come and join us ... You're Invited (and bring a friend) to a Cholangio Get-Together ! Steve and I would love to welcome our amazing Cholangio Patients and Caregivers to a special get-together in BRISBANE !

## My Testimonials

- [William](https://cholangio.org/wpt-testimonial/william/) - Our mother expressed gratitude and wanted to thank the foundation for the strength and guidance as she fought for her life. She always found strength from those in the community. We are forever thankful for the comfort and wisdom you provided her. ~ William
- [Micheal](https://cholangio.org/wpt-testimonial/micheal/) - I will always be deeply grateful to you and your team, but especially to you, Steve. When I first reached out to you, both here and while you were overseas, you gave your time so generously. Your rapid response and guidance during such a desperate time truly touched me, and it’s something I will never
- [Elaine](https://cholangio.org/wpt-testimonial/elaine/) - Losing Adrian was the hardest thing I’ve ever faced, but I wasn’t alone. From the moment we connected, the Cholangiocarcinoma Foundation Australia stood beside us. They helped us understand Adrian’s diagnosis in a way that made sense, gave us the tools to ask the right questions, and guided us gently through decisions no family ever
- [Lynette Williams](https://cholangio.org/wpt-testimonial/lynette-williams/) - Supporting CCF Australia initiatives is to support patient survival I have read and used the Patient Navigator Journal, and it has been a godsend. It’s exceptionally well-written, easy to follow, and fills a gap that has existed for ICC patients for so long. The step-by-step guidance has been invaluable in my treatment and healing process.
- [Shruti Bhutani](https://cholangio.org/wpt-testimonial/shruti-bhutani/) - The support we've received from the Cholangiocarcinoma Foundation Australia, the Facebook group, and individuals like Steve, Claire, and Ben has been a source of great comfort and strength. The selfless and fulfilling work that all of you are doing is truly commendable. I truly appreciate the significant work that the foundation is undertaking to bolster

## Categories

- [All](https://cholangio.org/category/all/)
- [Immunotherapy](https://cholangio.org/category/legacy/immunotherapy/)
- [Media](https://cholangio.org/category/legacy/media/)
- [PATIENT](https://cholangio.org/category/patient-support-network/patient/) - Patient Stories: Personal accounts from patients about their journey.
- [Chemotherapy](https://cholangio.org/category/legacy/chemotherapy/)
- [Prevention](https://cholangio.org/category/legacy/prevention/)
- [Clinical Trials](https://cholangio.org/category/treatments-trials/trials/)
- [Funding](https://cholangio.org/category/legacy/funding/)
- [Videos](https://cholangio.org/category/legacy/videos/)
- [SURGERY](https://cholangio.org/category/surgery/)
- [Nutrition](https://cholangio.org/category/legacy/nutrition/)
- [Newly Diagnosed](https://cholangio.org/category/legacy/about-where-to-start/)
- [Archived](https://cholangio.org/category/archived/)
- [PROFILING](https://cholangio.org/category/profiling/)
- [Patient Viewpoint](https://cholangio.org/category/legacy/patient-viewpoint/)
- [CCA Progress Reports](https://cholangio.org/category/legacy/cca-progress-reports/)
- [Publication](https://cholangio.org/category/legacy/publication/)
- [Testimonials](https://cholangio.org/category/patient-support-network/testimonials/)
- [Updates](https://cholangio.org/category/legacy/updates/)
- [Patient Story](https://cholangio.org/category/patient-support-network/patient-story/) - Patient Stories: Personal accounts from patients about their journey.
- [Education](https://cholangio.org/category/legacy/education/)
- [Trials & Studies](https://cholangio.org/category/legacy/trials-studies/)
- [Drug Reviews](https://cholangio.org/category/legacy/drug-reviews/)
- [Bile Gone Bad](https://cholangio.org/category/legacy/bile-gone-bad/)
- [Treatments](https://cholangio.org/category/legacy/treatments/)
- [Investigative](https://cholangio.org/category/legacy/investigative/)
- [Genes](https://cholangio.org/category/legacy/genes/)
- [Q&A](https://cholangio.org/category/patient-support-network/qa/)
- [Remembrance](https://cholangio.org/category/patient-support-network/remembrance-patient-stories-support/) - Remembrance: Honoring and remembering patients who have passed.
- [Treatments & Trials](https://cholangio.org/category/treatments-trials/)
- [Combinations](https://cholangio.org/category/treatments-trials/combinations/)
- [Patient Support Network](https://cholangio.org/category/patient-support-network/)
- [Inspiration & Reflection](https://cholangio.org/category/inspiration-reflection/)
- [Research and Bile Health](https://cholangio.org/category/bileflow/)
- [Project BILEflow](https://cholangio.org/category/bileflow/project-bileflow/) - Project BILEflow: Posts related to the research initiative on bile health and metabolic dysfunction, aiming at identifying chronic precancerous conditions.
- [Bile Health & Composition](https://cholangio.org/category/bileflow/bile-health-composition/) - Bile Health & Composition: Educational posts detailing bile health and composition for both patients and healthcare providers, including preventive strategies for at-risk individuals.
- [Light Australia Green:](https://cholangio.org/category/light-australia-green/) - Innovative national awareness, engagement and collaboration initiative driving bile health, care and response strategies. Includes state Symposiums, Australian World Cholangio Day Events, and an annual conference uniting patients, caregivers, healthcare professionals, and scientists to foster greater collaboration and accountability.
- [Z-Legacy](https://cholangio.org/category/legacy/)
- [News and Updates](https://cholangio.org/category/news-and-updates/)
- [Cholangio Today](https://cholangio.org/category/cholangio-today/)
- [Understanding Cancer Biology](https://cholangio.org/category/understanding-cancer-biology/)
- [Clinicians](https://cholangio.org/category/clinicians/)
- [Patient Access & System Response](https://cholangio.org/category/tga/)
- [Patient Stories](https://cholangio.org/category/community-culture/patient-stories/) - Pillar Page / Category
- [Architecture & Systemisation](https://cholangio.org/category/architecture-systemisation/)
- [Inside Biology](https://cholangio.org/category/inside-biology/)
- [Community & Culture](https://cholangio.org/category/community-and-culture/)
- [*Precision Medicine](https://cholangio.org/category/precision-medicine/) - This Precision Medicine hub page gives patients the molecular map: how genomic profiling, biomarkers, immunotherapy, targeted therapy, and clinical trials may reveal treatment options that are not visible from diagnosis alone.
- [*Newly-diagnosed](https://cholangio.org/category/newly-diagnosed/) - This is the real Hub Page for “Newly Diagnosed / Response System”: it is built to orient patients fast, strengthen internal linking, and support CFA’s authority around patient response.
- [COMMUNITY CULTURE](https://cholangio.org/category/community-culture/) - Main Hub

## Tags

- [patient](https://cholangio.org/tag/patient/)
- [Steve Holmes](https://cholangio.org/tag/steve-holmes/)
- [immunotherapy](https://cholangio.org/tag/immunotherapy/)
- [Bayer](https://cholangio.org/tag/bayer/)
- [MSI-H](https://cholangio.org/tag/msi-h/)
- [Keytruda](https://cholangio.org/tag/keytruda/)
- [whipple](https://cholangio.org/tag/whipple/)
- [aneurysm](https://cholangio.org/tag/aneurysm/)
- [Gem/Cis](https://cholangio.org/tag/gem-cis/)
- [Chemotherapy](https://cholangio.org/tag/chemotherapy/)
- [PMS2](https://cholangio.org/tag/pms-2/)
- [MHL1](https://cholangio.org/tag/mhl-1/)
- [Australia](https://cholangio.org/tag/australia/)
- [Melanoma](https://cholangio.org/tag/melanoma/)
- [Pembrolizumab](https://cholangio.org/tag/pembrolizumab/)
- [PD-L1](https://cholangio.org/tag/pd-l1/)
- [capecitabine](https://cholangio.org/tag/capecitabine/)
- [bile Duct Cancer](https://cholangio.org/tag/bile-duct-cancer/)
- [How](https://cholangio.org/tag/how/)
- [Exercise](https://cholangio.org/tag/exercise/)
- [Funding](https://cholangio.org/tag/funding/)
- [Rare Cancers](https://cholangio.org/tag/rare-cancers/)
- [Government](https://cholangio.org/tag/government/)
- [Voyager-V1](https://cholangio.org/tag/voyager-v1/)
- [Bavencio](https://cholangio.org/tag/bavencio/)
- [Colorectal Cancer](https://cholangio.org/tag/colorectal-cancer/)
- [virotherapy](https://cholangio.org/tag/virotherapy/)
- [USA](https://cholangio.org/tag/usa/)
- [Lynch Syndrome](https://cholangio.org/tag/lynch-syndrome/)
- [TP53](https://cholangio.org/tag/tp53/)
- [ARID1A](https://cholangio.org/tag/arid1a/)
- [BRCA1/2](https://cholangio.org/tag/brca1-2/)
- [HER2 amplification](https://cholangio.org/tag/her2-amplification/)
- [dmmr](https://cholangio.org/tag/dmmr/)
- [Videos-Patients](https://cholangio.org/tag/videos-patients/)
- [Videos-Immuno](https://cholangio.org/tag/videos-immuno/)
- [Videos-Nutrition](https://cholangio.org/tag/videos-nutrition/)
- [Videos-Trials](https://cholangio.org/tag/videos-trials/)
- [Surgery](https://cholangio.org/tag/surgery/)
- [Videos-About + Options](https://cholangio.org/tag/videos-about-options/)
- [Biliary RFA](https://cholangio.org/tag/biliary-rfa/)
- [curative](https://cholangio.org/tag/curative/)
- [Videos-Surgery](https://cholangio.org/tag/videos-surgery/)
- [Terminology](https://cholangio.org/tag/terminology/)
- [Education](https://cholangio.org/tag/education/)
- [PD-1 Checkpoint inhibitors](https://cholangio.org/tag/pd-1-checkpoint-inhibitors/)
- [Opdivo](https://cholangio.org/tag/opdivo/)
- [EGFR](https://cholangio.org/tag/egfr/)
- [ALK](https://cholangio.org/tag/alk/)
- [videos-chemotherapy](https://cholangio.org/tag/videos-chemotherapy/)
- [bile ducts](https://cholangio.org/tag/bile-ducts/)
- [videos-How](https://cholangio.org/tag/videos-how/)
- [Car-T Cells](https://cholangio.org/tag/car-t-cells/)
- [Oncologists](https://cholangio.org/tag/oncologists/)
- [GENOME](https://cholangio.org/tag/genome/)
- [epigenetic](https://cholangio.org/tag/epigenetic/)
- [FGFR2](https://cholangio.org/tag/fgfr2/)
- [IDH1](https://cholangio.org/tag/idh1/)
- [TAS-120](https://cholangio.org/tag/tas-120/)
- [ABC-02](https://cholangio.org/tag/abc-02/)
- [VEGFR](https://cholangio.org/tag/vegfr/)
- [BAP1](https://cholangio.org/tag/bap1/)
- [IDH1/2](https://cholangio.org/tag/idh1-2/)
- [BAY1436032](https://cholangio.org/tag/bay1436032/)
- [olaparib](https://cholangio.org/tag/olaparib/)
- [Lynparza](https://cholangio.org/tag/lynparza/)
- [BRAF](https://cholangio.org/tag/braf/)
- [MMR](https://cholangio.org/tag/mmr/)
- [KEYNOTE-158](https://cholangio.org/tag/keynote-158/)
- [MEK](https://cholangio.org/tag/mek/)
- [MET](https://cholangio.org/tag/met/)
- [VEGFR2](https://cholangio.org/tag/vegfr2/)
- [ramucirumab](https://cholangio.org/tag/ramucirumab/)
- [Cyramza](https://cholangio.org/tag/cyramza/)
- [TreeTopp](https://cholangio.org/tag/treetopp/)
- [Kelly](https://cholangio.org/tag/kelly/)
- [TIL](https://cholangio.org/tag/til/)
- [Adoptive Sell Therapy](https://cholangio.org/tag/adoptive-sell-therapy/)
- [Intrahepatic](https://cholangio.org/tag/intrahepatic/)
- [UCSF](https://cholangio.org/tag/ucsf/)
- [caregiver](https://cholangio.org/tag/caregiver/)
- [MSI](https://cholangio.org/tag/msi/)
- [HER2](https://cholangio.org/tag/her2/)
- [adoptive Cell Therapy](https://cholangio.org/tag/adoptive-cell-therapy/)
- [Network](https://cholangio.org/tag/network/)
- [Organisations](https://cholangio.org/tag/organisations/)
- [groups](https://cholangio.org/tag/groups/)
- [tool kit](https://cholangio.org/tag/tool-kit/)
- [Molecular](https://cholangio.org/tag/molecular/)
- [Mutations](https://cholangio.org/tag/mutations/)
- [CCF](https://cholangio.org/tag/ccf/)
- [Scan](https://cholangio.org/tag/scan/)
- [terminologies](https://cholangio.org/tag/terminologies/)
- [Pdl](https://cholangio.org/tag/pdl/)
- [tmb](https://cholangio.org/tag/tmb/)
- [Posters](https://cholangio.org/tag/posters/)
- [Trial News](https://cholangio.org/tag/trial-news/)
- [Trial Patient](https://cholangio.org/tag/trial-patient/)
- [treatment](https://cholangio.org/tag/treatment/)
- [cholangio101](https://cholangio.org/tag/cholangio101/)
- [fgf](https://cholangio.org/tag/fgf/)
- [research](https://cholangio.org/tag/research/)
- [IHC](https://cholangio.org/tag/ihc/)
- [Blood Biopsy](https://cholangio.org/tag/blood-biopsy/)
- [Tips](https://cholangio.org/tag/tips/)
- [Biomarkers](https://cholangio.org/tag/biomarkers/)
- [jim allison](https://cholangio.org/tag/jim-allison/)
- [CTLA-4](https://cholangio.org/tag/ctla-4/)
- [World Cholangiocarcinoma day](https://cholangio.org/tag/world-cholangiocarcinoma-day/)
- [surgeon](https://cholangio.org/tag/surgeon/)
- [Genomic](https://cholangio.org/tag/genomic/)
- [Update](https://cholangio.org/tag/update/)
- [Willingness](https://cholangio.org/tag/willingness/)
- [Mindfulness](https://cholangio.org/tag/mindfulness/)
- [Sharing](https://cholangio.org/tag/sharing/)
- [Patient Success](https://cholangio.org/tag/patient-success/)
- [Second Opinion](https://cholangio.org/tag/second-opinion/)
- [Topaz](https://cholangio.org/tag/topaz/)
- [durvalumab](https://cholangio.org/tag/durvalumab/)
- [Clinical Trial](https://cholangio.org/tag/clinical-trial/)
- [Testimonials](https://cholangio.org/tag/testimonials/)
- [News Update](https://cholangio.org/tag/news-update/)
- [Infinzi](https://cholangio.org/tag/infinzi/)
- [Graeme Holmes](https://cholangio.org/tag/graeme-holmes/)
- [PD-L1 Checkpoint Inhibitors](https://cholangio.org/tag/pd-l1-checkpoint-inhibitors/)
- [Checkpoint Pathway](https://cholangio.org/tag/checkpoint-pathway/)
- [HiPEC](https://cholangio.org/tag/hipec/)
- [Perception](https://cholangio.org/tag/perception/)
- [Objectivity](https://cholangio.org/tag/objectivity/)
- [Will](https://cholangio.org/tag/will/)
- [Imfinzi](https://cholangio.org/tag/imfinzi/)
- [AstraZeneca](https://cholangio.org/tag/astrazeneca/)
- [Partnership](https://cholangio.org/tag/partnership/)
- [Perth](https://cholangio.org/tag/perth/)
- [MTAP Loss](https://cholangio.org/tag/mtap-loss/)
- [ARTEMIDE-Biliary01](https://cholangio.org/tag/artemide-biliary01/)
- [PD-1](https://cholangio.org/tag/pd-1/)
- [TIGIT](https://cholangio.org/tag/tigit/)
- [Rilvegostomig](https://cholangio.org/tag/rilvegostomig/)
- [PARP Inhibitor](https://cholangio.org/tag/parp-inhibitor/)
- [Gem/Cis/Durva](https://cholangio.org/tag/gem-cis-durva/)
- [Gem/Cis/Keytruda](https://cholangio.org/tag/gem-cis-keytruda/)
- [Bile Gone Bad](https://cholangio.org/tag/bile-gone-bad/)
- [120-205](https://cholangio.org/tag/120-205/)
- [Tiaho](https://cholangio.org/tag/tiaho/)
- [BRCA1](https://cholangio.org/tag/brca1/)
- [BRCA2](https://cholangio.org/tag/brca2/)
- [Lynette Williams](https://cholangio.org/tag/lynette-williams/)
- [Coffs Harbour](https://cholangio.org/tag/coffs-harbour/)
- [New South Wales](https://cholangio.org/tag/new-south-wales/)
- [Ipilum](https://cholangio.org/tag/ipilum/)
- [Cholangio Challenger](https://cholangio.org/tag/cholangio-challenger/)
- [Michael Flannery](https://cholangio.org/tag/michael-flannery/)
- [PARP Inhibitors](https://cholangio.org/tag/parp-inhibitors/)
- [IDH1 Mutation](https://cholangio.org/tag/idh1-mutation/)
- [iCCA](https://cholangio.org/tag/icca/)
- [ATR Inhibitors](https://cholangio.org/tag/atr-inhibitors/)
- [RAD-3](https://cholangio.org/tag/rad-3/)
- [Shruti](https://cholangio.org/tag/shruti/)
- [IDH2](https://cholangio.org/tag/idh2/)
- [Mitochondria](https://cholangio.org/tag/mitochondria/)
- [clinical](https://cholangio.org/tag/clinical/)
- [TAS](https://cholangio.org/tag/tas/)
- [remembrance](https://cholangio.org/tag/remembrance/)
- [vaccine](https://cholangio.org/tag/vaccine/)
- [Jon Laing](https://cholangio.org/tag/jon-laing/)
- [Melbourne](https://cholangio.org/tag/melbourne/)
- [AGITG](https://cholangio.org/tag/agitg/)
- [PARP. Olaparib](https://cholangio.org/tag/parp-olaparib/)
- [PLT012](https://cholangio.org/tag/plt012/)
- [TAS120](https://cholangio.org/tag/tas120/)
- [Bilirubin](https://cholangio.org/tag/bilirubin/)
- [Bile](https://cholangio.org/tag/bile/)
- [Liver Resection](https://cholangio.org/tag/liver-resection/)
- [Webinar](https://cholangio.org/tag/webinar/)
- [CCF Team](https://cholangio.org/tag/ccf-team/)
- [Natalie Rickers](https://cholangio.org/tag/natalie-rickers/)
- [Jill Brown](https://cholangio.org/tag/jill-brown/)
- [Claire Holmes](https://cholangio.org/tag/claire-holmes/)
- [Catie Brown](https://cholangio.org/tag/catie-brown/)
- [Margaret Farnworth](https://cholangio.org/tag/margaret-farnworth/)
- [Omico](https://cholangio.org/tag/omico/)
- [David Thomas](https://cholangio.org/tag/david-thomas/)
- [John Zalcberg](https://cholangio.org/tag/john-zalcberg/)
- [Juane Valle](https://cholangio.org/tag/juane-valle/)
- [Patient Survivor](https://cholangio.org/tag/patient-survivor/)
- [Servier](https://cholangio.org/tag/servier/)
- [Stage 4](https://cholangio.org/tag/stage-4/)
- [Tumors](https://cholangio.org/tag/tumors/)
- [Curtain University](https://cholangio.org/tag/curtain-university/)
- [Ben Dwyer](https://cholangio.org/tag/ben-dwyer/)
- [Sandra Robertson](https://cholangio.org/tag/sandra-robertson/)
- [Pemazyre](https://cholangio.org/tag/pemazyre/)
- [Pemigatinib](https://cholangio.org/tag/pemigatinib/)
- [FGFR2 fusion](https://cholangio.org/tag/fgfr2-fusion/)
- [FGFR2 inhibitor](https://cholangio.org/tag/fgfr2-inhibitor/)
- [targeted therapy](https://cholangio.org/tag/targeted-therapy/)
- [Fusion Mutation](https://cholangio.org/tag/fusion-mutation/)
- [inhibitor](https://cholangio.org/tag/inhibitor/)
- [5 years](https://cholangio.org/tag/5-years/)
- [brisbane](https://cholangio.org/tag/brisbane/)
- [ERBB2](https://cholangio.org/tag/erbb2/)
- [Enhertu](https://cholangio.org/tag/enhertu/)
- [Podcast](https://cholangio.org/tag/podcast/)
- [ATM](https://cholangio.org/tag/atm/)
- [bridging funding](https://cholangio.org/tag/bridging-funding/)
- [patient access](https://cholangio.org/tag/patient-access/)
- [PBS access](https://cholangio.org/tag/pbs-access/)
- [Joe Tuimavave](https://cholangio.org/tag/joe-tuimavave/)
- [Joe and Tegan](https://cholangio.org/tag/joe-and-tegan/)
- [Beth Ivemy](https://cholangio.org/tag/beth-ivemy/)
- [Survivor](https://cholangio.org/tag/survivor/)
- [Steven West](https://cholangio.org/tag/steven-west/)
- [Wayne and Cheryl Troy](https://cholangio.org/tag/wayne-and-cheryl-troy/)
- [NSW](https://cholangio.org/tag/nsw/)
- [Tibsova](https://cholangio.org/tag/tibsova/)
- [Mandy Wallace](https://cholangio.org/tag/mandy-wallace/)
- [New Zealand](https://cholangio.org/tag/new-zealand/)
- [Mistakes](https://cholangio.org/tag/mistakes/)
- [How We Win](https://cholangio.org/tag/how-we-win/)
- [Cholangio OS](https://cholangio.org/tag/cholangio-os/)
- [The Three Survival Disciplines](https://cholangio.org/tag/the-three-survival-disciplines/)
- [cold tumours](https://cholangio.org/tag/cold-tumours/)
- [Hot Tumours](https://cholangio.org/tag/hot-tumours/)
- [Stephanie Kleine-Ahlbrandt](https://cholangio.org/tag/stephanie-kleine-ahlbrandt/)
- [Patient-Led Strategy](https://cholangio.org/tag/patient-led-strategy/)
- [Cognition](https://cholangio.org/tag/cognition/)
- [NGR1 Fusion](https://cholangio.org/tag/ngr1-fusion/)
- [CK7](https://cholangio.org/tag/ck7/)
- [pathology](https://cholangio.org/tag/pathology/)
- [genomic profiling](https://cholangio.org/tag/genomic-profiling/)
- [precision medicine](https://cholangio.org/tag/precision-medicine/)
- [matched therapy](https://cholangio.org/tag/matched-therapy/)
- [clinical trials](https://cholangio.org/tag/clinical-trials/)
- [treatment pathways](https://cholangio.org/tag/treatment-pathways/)
- [cholangiocarcinoma webinar](https://cholangio.org/tag/cholangiocarcinoma-webinar/)
- [biliary tract cancer](https://cholangio.org/tag/biliary-tract-cancer/)
- [MoST](https://cholangio.org/tag/most/)
- [CaSP](https://cholangio.org/tag/casp/)
- [CK19](https://cholangio.org/tag/ck19/)
- [Cholangiocarcinoma](https://cholangio.org/tag/cholangiocarcinoma/)
- [Biliary Tract Cancers](https://cholangio.org/tag/biliary-tract-cancers/)
- [Cholangiocytes](https://cholangio.org/tag/cholangiocytes/)
- [IHC Markers](https://cholangio.org/tag/ihc-markers/)
- [Bile Flow Bile](https://cholangio.org/tag/bile-flow-bile/)
- [Cytology Early Detection](https://cholangio.org/tag/cytology-early-detection/)
- [Epithelial](https://cholangio.org/tag/epithelial/)
- [Genomic Testing](https://cholangio.org/tag/genomic-testing/)

## Event Categories

- [Calendar](https://cholangio.org/events/category/calendar/)